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The Cambridge Rare Disease Showcase

16th August at 6:30 pm - 9:00 pm

[Image description: A photograph of two people stood up talking at a Findacure workshop. They are smiling and using hand gestures.]
Findacure is delighted to announce the return of its annual Cambridge Rare Disease Showcase!

Cambridge is a well-known hub of scientific research, with a cluster of patient groups, advocacy networks, industry, clinicians and academics focused on rare diseases.

Our evening showcase, taking place on Thursday 16th August at Baroosh in central Cambridge, will be a fantastic opportunity to hear the latest news from Cambridge’s rare disease community, and network over delicious canapes and prosecco.The showcase will also consist of a selection of five-minute lightning talks, delivered by members of our audience.

Anyone with an interest in rare diseases is welcome to attend and registration is free for patients, patient groups and charity representatives.

If you have any questions or are interested in sponsorship opportunities, please contact [email protected].

Programme

18:30 – Registration

19:00 – Welcome and introduction to Findacure

 

From this point onwards, the evening will consist of open networking, complemented by six delegate proposed five-minute lightning talks. Canapés and refreshments will also be served.

19:10 – UK PAWS GIST Clinic: collaboration between patients, carers and healthcare professionals
Dr Venkata Ramesh Bulusu   Lead Clinician, UK PAWS GIST Clinic, Cambridge University Hospitals

19:30 – Market access challenges in rare diseases
Robert Whitemore   Director, Roboleo & Co

19:50 – Finding genetic interactions with therapeutic potential in rare disease
Ramsay Bowden   Clinical Research Fellow, Steve Jackson Laboratory, Gurdon Institute, University of Cambridge

20:10 – Exploring a peer-led approach to encouraging self-management in young people living with haemophilia
Laurence Woollard   Director, On The Pulse Consultancy

20:30 – Dyskeratosis congenita – time for DC Action
Hilary Longhurst   Medical Adviser, DC Action

20:50 – Maximising the value of expert opinion in rare diseases
Annabel Griffiths   Head of Rare Diseases, Costello Medical

20:55 – Closing remarks

21:00 – End of showcase

Download the programme

With thanks to our sponsor:
We would like to thank our sponsor for providing financial support for this event. This event is organised solely by Findacure and our sponsor has not determined the content.

Details

Date:
16th August
Time:
6:30 pm - 9:00 pm
Event Category:
Website:
https://www.eventbrite.co.uk/e/the-cambridge-rare-disease-showcase-tickets-46937610657

Organizer

Mary Rose Roberts
Email:
maryrose@findacure.org.uk.

Venue

Baroosh
8 Market Passage
Cambridge,CB2 3PFUnited Kingdom
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