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The Glasgow Rare Disease Showcase
10th October at 10:00 am - 5:00 pm
October will see the Findacure team crossing borders to celebrate rare disease projects in Scotland! Our Glasgow Rare Disease Showcase will unite the rare disease community and provide an opportunity for patient groups, researchers, clinicians, and the life sciences industry to come together as equals and share their rare disease stories.
09:30 – Registration
10:00 – Welcome
10:10 – Introduction to Findacure
Dr Rick Thompson CEO, Findacure
10:30 – Spinal muscular atrophy: progress and challenges in drug development for a rare neurological disease
Dr Ewout Groen Postdoctoral Researcher, Gillingwater Group, University of Edinburgh
11:00 – A small fish in a large pond
Tracy Milne Founder, Alfie Milne Lymphangiomatosis Trust
11:30 – Tea break
12:00 – Early access programs
Tom Watson Executive Vice President, Bionical
12:30 – Lightning talk session
13:00 – Lunch
14:30 – Living with lyme disease: a patient’s perspective
15:00 – The Office for Rare Conditions, Glasgow: progress and developments
Dr Martina Rodie Consultant Neonatologist, Office for Rare Conditions, Glasgow
15:30 – Comfort break
15:45 – Lightning talk session
16:15 – Rare disease policy in Scotland: Q & A panel session
17:00 – End of Showcase
The showcase is open to anyone with an interest in rare diseases and lightning talk proposals are welcome from all delegates. Calls for lightning talks will be open until early September and can be put forward during the registration process.
We are also very pleased to offer a number of exhibition stands to patient organisations, completely free of charge. If you’d like the opportunity to exhibit at the showcase, please complete this form.
If you have any questions or are interested in sponsorship opportunities, please contact [email protected].
With thanks to our sponsors:
We would like to thank our sponsors for providing financial support for The Glasgow Rare Disease Showcase. This event is solely organised by Findacure and our sponsors have not determined the content.