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August 2018

The Cambridge Rare Disease Showcase

16th August at 6:30 pm - 9:00 pm
Baroosh, 8 Market Passage
Cambridge,CB2 3PFUnited Kingdom
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[Image description: A photograph of two people stood up talking at a Findacure workshop. They are smiling and using hand gestures.]

Findacure is delighted to announce the return of its annual Cambridge Rare Disease Showcase! Cambridge is a well-known hub of scientific research, with a cluster of patient groups, advocacy networks, industry, clinicians and academics focused on rare diseases. Our evening showcase, taking place on Thursday 16th August at Baroosh in central Cambridge, will be a fantastic opportunity to hear the latest news from Cambridge's rare disease community, and network over delicious canapes and prosecco.The showcase will also consist of a…

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Dare for Rare skydive

25th August
[Image description: a photograph of two people in the sky doing a tandem skydive]

Take to the skies in this adrenaline filled challenge to raise money for Findacure! Tick this adventure off your bucket list and experience the unforgettable thrill of a tandem skydive. Back for the third year, our Dare for Rare skydive is one of our most exciting dates in the calendar. The dive will be taking place at the North London Skydiving Centre in Cambridgeshire and you can visit their website for more information at www.ukskydiving.com. Event details: £85 registration fee…

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September 2018

London to Cambridge cycle ride

16th September
[Image description: Four fundraisers stood at the finish line of a cycle race wearing helmets and standing next to their bikes]

Grab your helmet and take on this brilliant cycling challenge to raise money for Findacure! Cycle 60 scenic miles from London to Cambridge on a fully supported and sign posted route as part of Team Findacure. Event details: £25 registration fee per rider Suitable for a range of abilities and ages Free mechanic service on the day and four refreshment stops en route Free refreshments for every rider and a medal at the finish line Great event for teams of…

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Social research – how to go about it?

19th September at 10:00 am - 4:00 pm
Kudos Health, 4 Cam Road
Stratford, London,E15 2SN
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[Image description: Infographic showing details of the "Social Research - how to go about it" workshop. The image reads: A #KudosHealthEvent. Our speakers will offer advice and expertise on social research, including best practive and how to avoid common pitfalls. Taking place on Wednesday 19th September in London. A Kudos Health Event in collaboration with Findacure.]

Kudos Health and Findacure invite you to join them at the second #KudosHealthDay to learn all about social research. Whether it be to assess the impact of a project, identify a community’s research priorities, or collect evidence on the burden of disease on patients and their families, social research can be very valuable to the work of rare disease patient organisations - but getting started can be a difficult process. Kudos Health is working in partnership with Findacure to deliver…

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October 2018

The Glasgow Rare Disease Showcase

10th October at 10:00 am - 5:00 pm
[Image description: A photograph of two people stood up talking at a Findacure conference. Both people are smiling as though they are laughing with each other.]

October will see the Findacure team crossing borders to celebrate rare disease projects in Scotland! Our Glasgow Rare Disease Showcase will unite the rare disease community and provide an opportunity for patient groups, researchers, clinicians, and the life sciences industry to come together as equals and share their rare disease stories. In particular, our showcase will include: highlights of exciting developments in Scotland's rare disease community two(!) lightning talk sessions with delegate proposed five-minute talks a panel session discussing rare disease…

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