Findacure run a number of networking events each year, with the aim of promoting collaboration between key stakeholders within the rare disease community. These key stakeholders include patient groups, clinicians, pharmaceutical companies, biotech industries, and charities, who we bring together in one room to share ideas and encourage research.
Our showcase events come in two formats:
Regardless of format, all events share a series of key features:
Informal setting – Our networking events aim to provide an informal setting for different members of the rare disease and biomedical communities to meet, talk, and forge new relationships.
Diverse audience – We host a diverse audience at all of our events, which truly represents the rare disease community. It is crucial that all stakeholders, including patients and patient groups, have a strong representation. This helps to break down barriers in patient-industry interaction and collaboration.
Talks to generate conversation – Networking can be a little daunting – long stretches of time with new faces and unstructured conversation are not always easy. To break the evening up, and provide vital talking points, Findacure intersperse networking sessions with 5 minute ‘lightning talks’. These short talks are proposed and delivered by delegates, usually on a specific theme, and give everyone a chance to share their work and ideas with the whole room. They have proved popular so far, and give the event a sense of purpose and pace.
Low price of attendance – With most costs covered by our sponsors, we aim to deliver low prices for the event, with all contributions raising funds for Findacure. We aim to provide the lowest price to patients and patient groups, with independent price points for academia and industry.
Following the success of our networking evenings in Cambridge and the Midlands Rare Disease Showcase, we are planing to increase our engagement around the UK. In 2017, we are planning events in Cardiff, Cambridge and Newcastle.
Our next networking event, The Cardiff Rare Disease Showcase, will be on Thursday 4th May at the Life Sciences Hub Wales. This will be an opportunity to highlight rare disease projects in Wales and will include case studies from the ED Society and Tuberous Sclerosis researchers. More information can be found on our webpage and tickets can be purchased on Eventbrite.
If you would like to get involved with any of these events, become a corporate sponsor, or have suggestions for future destinations please contact our Events Officer Mary Rose at [email protected]
You can find out more information about our previous networking events, along with links to blogs, programmes, and talk videos below.
Our first Showcase event was held Saturday 22nd October, in collaboration with Birmingham Children’s Hospital. The event took place at the Hospital itself, and was an opportunity to celebrate progress in the rare disease sector in the heart of England and featured a full programme of talks and networking session.
If you would like to learn more about the event you can find the event programme here. Our summary of the day and YouTube playlist of the event’s talks and lightning talks both provide a more detail insight into the event.
Our second networking event took place in May 2016 and saw over 40 delegates joining us in Cambridge. With lightning talks from Raremark, Abcam, Cambridge Rare Disease Network, the Gurdon Institute and Costello Medical, the event was a great success.
Our first networking event took place in August 2015 and featured six lightning talks from delegates highlighting the work being done in drug repurposing and rare disease research today.