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Here at Findacure we like to give all of our wonderful supporters the chance to meet the people behind the organisation, so today I will be giving you a bit of an insight into the work what my role as the Fundraising and Communications Officer has entailed over the last year.

One of my favourite things about the role is how varied it is, and the fact that there’s always an exciting project on the horizon.

Because Findacure is a small charity, with a very small team, the tasks I do day-to-day can span all sorts of different activities. For our fundraising, I write bids to trusts and foundations to ensure we’ll have enough money to keep our rare disease patient empowerment programme going, I manage our fundraising events and work to build new relationships with businesses or local groups. On the communications side, I run our social media accounts, design marketing materials and work with agencies to develop them, write content for our website and manage our PR & press relationships. It can get very busy, but at least it’s never dull.

It’s wonderful to work in an organisation where you can see the results of your work so quickly. I find speaking to patients at our workshops or other projects incredibly inspiring. It’s amazing how innovatively patient groups adopt the strategies they’re taught at our workshops, and it’s always great to hear that another group has gotten started with a research project, or secured some funding to move their organisations forward. It’s a cliché, but it really is rewarding to know that our work is making a real difference in the lives of rare disease patients, who may not have anywhere else to gain valuable instruction in how to develop their patient groups.

Whilst I’ve really enjoyed my time here, I will soon be moving on for a new opportunity. If my job sounds like it would interest you, you can you can find details of applying by following this link – and feel free to get in touch via [email protected] if you’d like to know any more about the role.

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Meet Louisa, our outgoing Fundraising & Communications Officer – and apply to be our new one!

by Guest Contributer time to read: 1 min
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