Tomorrow marks Findacure’s three year anniversary! We’ve come a long way since we were registered as a charity by Dr Nick Sireau and Dr Anthony Hall on the 7th November 2012. Here are some of our highlights from the past year…
14th November 2014 – Findacure won the ROAR Inspirational Stakeholder Award. ROAR Awards honour positive contributions to the rare disease and orphan drug industry.
21st November 2014 – Our Peer Mentoring Scheme, which paired 16 mentors with patient group representatives, was launched. Pairs have since been working toward specified goals, often with great success.
30th January 2015 – Findacure’s workshop on how to identify patients kick-started the 2015 series. The three that followed were focussed on communications and PR (17/04/15), working with Pharma (12/06/2015), and crowdfunding (11/09/2015). In total, we had 162 attendees with very positive feedback.
28th February 2015 – 53 delegates, representing patient groups, research teams, universities, hospitals and drug repurposing companies, gathered in London for our annual Rare Disease Day scientific conference. The topic was Drug Repositioning for Fundamental Diseases.
28th March 2015 – We launched our first youth-centred project, Cross Your Own Oceans, with help from Elin Haf Davies and BBC Children in Need. Four teenagers with different rare diseases met in London for three days of fun activities and adventures.
17th April 2015 – The Online Portal went live! Featuring short written guides and training videos, the Portal advises patients and advocates about specific topics. Why not check it out? We’d love your feedback: www.findacure.org.uk/portal
11th May 2015 – Hello to our new Scientific Officer, Dr Rick Thompson! Rick has been making leaps and bounds in our drug repurposing project.
17th May 2015 – Raising a fantastic £1700 between them, 11 runners donned their capes for us at the 10km Superhero run.
June 2015 – Findacure received a generous donation from Ely Hereward Rotary Club and the Rotary Club of Ely, in addition to Oliver Wyman’s pro bono support for our drug repurposing strategy.
24th June 2015 – Flóra and Nick were each honoured by being shortlisted for the Tribute to Champions of Hope Award for Collaborations in Advocacy.
July 2015 – The team enjoyed meeting the Sony Mobile Challenge group, who helped us to develop our communications strategy.
16th August 2015 – Elin Haf Davies and Flic Gabbay each took part in the Rolex Fastnet Race, a 600+ mile sailing event! They raised over £2000 for Findacure between them – well done!
20th August 2015 – We hosted our first networking event, which gave those with an interest in drug repurposing the opportunity make friends and share knowledge.
September 2015 – Costello Medical helped us to model the cost of Congenital Hyperinsulinism on a pro bono basis. This was the first step of our first drug repurposing project!
14th September 2015 – Findacure co-organised a conference with the Cambridge Rare Disease Network. The event brought together 150 key stakeholders to debate how to best address the unmet needs of rare disease patients.
28th September 2015 – Our new Fundraising and Communications Officer, Libbie, joined us. She’s still finding her feet, but is really enjoying her new role!
October 2015 – We were awarded with generous donations from the Wasps Legends Charitable Foundation and the Morrison’s Foundation for our 2016 patient workshops.
5th October 2015 – Our 2015 Student Essay Competition was launched, with fantastic prizes including publication in a scientific journal. Entries will close on 13th November.
11th October 2015 – 20 keen runners represented us at the Royal Parks Half Marathon, raising over £7000!
We’d like to thank everyone who’s been part of our fantastic third year – you’ve all been brilliant! If you’d like to see highlights from our first two years, go to our two-year anniversary blog here.
But what do we hope to achieve in our fourth year? Our training workshops, scientific conference, networking events, drug repurposing project, and peer mentoring scheme are just some of the many exciting plans we have for the next year! If you have any feedback on past events or ideas for future projects, please don’t hesitate to get in touch; otherwise, watch this space![/two-third][one-third][/one-third][/row]