Relive The Virtual Rare Disease Showcase! You can now read a summary of the event and watch both Main Stage and Breakout Session recordings on-demand. Thank you for coming to the first-ever Rare Showcase of its kind and we look forward to seeing you again at another Findacure event soon!
In honour of Rare Disease Day 2021, we wanted to highlight the wonderful patient stories that have been shared with us throughout the year. Read one or read them all. This is all of our story and it’s been a privilege sharing your journeys on our blog. Happy Rare Disease Day! We’ll never stop fighting for you and the rare community.
After three months and many impressive submissions and patient group pairings, we have the four 2020 Student Voice Prize winners! Please say hello and congratulations to our 2020 overall winner and three 2020 runner-ups!
If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you in a simple, easy-to-read blog. Learn what the UK Rare Disease Framework means for you and let us know your thoughts in the comments or by tagging us on social media!
We’re extremely optimistic about the new year and want to share with you what we’re most looking forward to in 2021 as a team. Hear from Mary Rose, Phil, Laura, Blayne and Rick on what they’re most excited for this year and let us know your thoughts in the comments.
Happy New Year! Here’s to making it a great one.