by Guest | Findacure projects
With yesterday’s Rare Disease Day featuring the publication of our 2018 essay competition winner, we are taking the opportunity to share another of our fantastic entries in our blog today. This essay focuses on what future doctors can learn from rare disease...
by Guest | Rare disease world
For those in the field, answering some of life’s most challenging medical questions is at the forefront each and every day. On February 28, organizations and advocates observe Rare Disease Day, a day dedicated to raising awareness of rare diseases worldwide. The day...
by Guest | Findacure projects
In this week’s blog we hear why Polly Moyer – founder of Action for MdDS UK – loves judging our Student Voice essay competition and her top tips for those raring to take part in our recently launched 2018 round. The first time I was asked to join the...
by Guest | Rare disease world
To mark World Duchenne Awareness Day, this week’s blog has been written by Nick Taussig, a parent of two boys living with Duchenne Muscular Dystrophy. He shares the story of how he and his friends designed and built a home adapted to his sons’ needs....