In July 2021, we hosted a three-day online workshop that focussed on data and its uses within the rare disease community. Don’t worry if you missed it, we have summarised it for you!
Back in March, we hosted a three-day online workshop that focused on mental health and wellbeing within the rare community. The goal of the workshop was to provide patient organisations with an in-depth understanding of mental health and give them the tools to recognise and cope with different mental health situations or challenges that could arise.
Meet our new Projects Administrator Hannah Harvey!