by Libbie Read | Rare disease world
Family days are fantastic events that connect rare disease communities, helping to break down the isolation that often comes with a rare diagnosis. The Norrie Disease Foundation held their own family day last month and organised an awareness week around it. They have... 
by Libbie Read | Fundraising events
As the countdown to Christmas gets fully underway, the Findacure team has had yet another busy weekend! Keep reading to see how we got on at the Mill Road Winter Fair, Cambridge’s RAREfest, and the London Santa Run. Mill Road Winter Fair – Katie We started... 
by Libbie Read | Findacure projects
The last month has been incredibly busy for the Findacure team: we’ve been here, there and everywhere! In addition to launching our Student Voice essay competition, we travelled to Glasgow for our Rare Disease Showcase, attended the EyeforPharma summit, did a street... 
by Libbie Read | Findacure events
Last weekend was a very busy one for the Findacure team. Katie and Libbie took Cambridge by storm, with Katie leading an army of Cambridge RAG bucket collectors and Libbie recruiting to the cause at Volunteer4Cambridge. Continue reading to find out how they got on.... 
by Libbie Read | Rare disease world
Receiving a rare diagnosis can be incredibly confusing and scary. Findacure is often contacted by patients desperately searching for more information and a community group to support them. While we actively refer people to the patient groups we work with, we don’t...