by Libbie Read | Rare disease world
There’s just over one month until the biggest day in the rare disease calendar: international Rare Disease Day! As the excitement builds, we at Findacure have taken a moment to reflect on why we love this celebration of all things rare. And if you’re... 
by Libbie Read | Findacure projects
In this week’s blog, we are delighted to look back on the jam-packed year of 2018. Click the links to find out more about each of our highlights, including video recordings of talks at all of our events! January Winners of our 2017 essay competition announced 2017 saw... 
by Libbie Read | Rare disease world
Family days are fantastic events that connect rare disease communities, helping to break down the isolation that often comes with a rare diagnosis. The Norrie Disease Foundation held their own family day last month and organised an awareness week around it. They have... 
by Libbie Read | Fundraising events
As the countdown to Christmas gets fully underway, the Findacure team has had yet another busy weekend! Keep reading to see how we got on at the Mill Road Winter Fair, Cambridge’s RAREfest, and the London Santa Run. Mill Road Winter Fair – Katie We started... 
by Libbie Read | Findacure projects
The last month has been incredibly busy for the Findacure team: we’ve been here, there and everywhere! In addition to launching our Student Voice essay competition, we travelled to Glasgow for our Rare Disease Showcase, attended the EyeforPharma summit, did a street...