Developing your online communications

Developing your online communications

Good online communications are very important when it comes to rare disease patient groups. Being online gives newly diagnosed patients a way to find you and benefit from the services, information and support you offer. It can also allow you to build a community of...
Peer mentoring programme: Meet Wendy

Peer mentoring programme: Meet Wendy

Following the launch of applications for our 2018 peer mentoring programme, we would like to share the story of one graduate, Wendy Horrobin, to show what patient groups can achieve on the scheme. Wendy’s 9 year-old son was born with Norrie disease. Norrie disease...
Our first webinar series is complete

Our first webinar series is complete

We at Findacure believe support groups hold the key to a better future for rare disease patients. They are in the best place to reach out to patients and provide them with the support they need, they are the most motivated to push research forward, and they are a...