Meet the team: Dare for Rare Skydive

This week’s blog continues our “Meet the team” blog series, introducing our fundraisers to the Findacure community. Meet our Dare for Rare Skydiving team! In August, Findacure will see some of its bravest supporters launching themselves from a plane...

So far in 2017…

It’s been mega busy lately at Findacure HQ, so busy in fact that we completely missed the halfway point of 2017! However, as things begin to slow down (who am I kidding?) and the days start to get shorter (winter is coming), Mary Rose has taken some time out to...

Setting up a patient group

Patient groups play a vital role in the rare diseases community – providing support, guidance and information to patients and their family members. But many groups don’t know where to start when it comes to establishing themselves and getting off the ground....