The Midlands Rare Disease Showcase

[row][two-third] This week, our Head of Research Rick, talks about Findacure and Birmingham Children’s Hospital’s collaborative event, The Midlands Rare Disease Showcase. This week Findacure did something unusual, and slightly daring – no, not departing...

Introduction to Patient Registries

Rare diseases pose great challenges for research, primarily because each condition affects so few people. Patients are dispersed around countries, around the world, and very little is known about how the condition progresses and affects individual people. Patient...

Meet Mary Rose, Our New Events Officer

We have a new member of staff, Mary Rose Roberts, who joined the Findacure team last week as our new Events Officer. In this post, we would like to introduce you to her.What were you doing before you joined Findacure?Before joining Findacure, I was busy finishing my...