Drug repurposing for rare diseases conference 2020

Drug repurposing for rare diseases conference 2020

Every year Findacure holds its conference – Drug Repurposing for Rare Diseases – in late February to celebrate Rare Disease Day. This is a chance for a diverse collection of people with an interest in rare diseases and drug repurposing to gather together and share their knowledge and experiences, and hopefully drive forward the redevelopment of old drugs for rare patients.

Leading a rare patient group

Leading a rare patient group

Our latest workshop on the 22nd January focused on the topic of leadership within a rare patient group. We all know that leadership is a skill we should be very aware of and try to be good at but sometimes it’s hard to know how to start thinking about your own leadership skills. In a patient group context when employees and volunteers are often busy with other things, leaders don’t always have time to reflect on and improve their practice.

Storytelling for patient groups

Storytelling for patient groups

On Wednesday 27th November, the 2019 peer mentoring cohort met in London to attend a training session led by Findacure trustee Andy Milligan, which focused on branding, marketing and how small charities can get their stories heard. Often when we hear the phrase...