On 23rd September, Rick and Mary Rose attended Cambridge Rare Disease Network’s RAREsummit at the Wellcome Genone Genome Campus in Hinxton.
Looking to raise awareness of your rare disease among medical professionals? Then look no further as we have the ideal opportunity for you.
Cambridge is one of the UK’s leading cities for scientific and medical research, with a cluster of patient and advocacy groups, clinicians, life science networks and academics focused on rare diseases. It also happens to be the location of Findacure HQ. This is why, each year, we hold the Cambridge Rare Disease Showcase, a highlight of our social calendar held right in the heart of the hustle and bustle of this great city.
On Friday 2nd August, team Findacure held a strategy day at Mary Rose’s house to discuss our aims over the next year, accompanied by her adorable cat, Jasper.
Seven years in the making: SONIA 2 and DevelopAKUre results analysed and positive trends identified!
Findacure would like to congratulate our co-founder Nick Sireau and office mates the AKU Society on the news that analysis of data from the SONIA 2 clinical trial has now been completed and very positive trends have been identified!