Blog

We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Taryn, our Communications Officer: taryn@findacure.org.uk

2020 vision

My supply of mince pies is finally exhausted, which can only mean one thing - the new year is upon us. As we have returned to our desks at Findacure HQ this week, we have all been turning our thoughts to the year ahead. What will 2020 bring for Findacure and the rare...

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Diving into drug repurposing

While we have dedicated a lot of time to running our annual conference to showcase excellence in the field, there has been less emphasis on educating the patient community. We thought that it was about time this changed, so on Tuesday 5th November we partnered with the MCDS-Therapy project to host our Diving into Drug Repurposing workshop at White and Case in London. This day-long event aimed to help patient organisations understand:

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World Orphan Drug Congress 2019

In this week’s blog, Mary Rose - our Head of Operations - tells us about Findacure’s recent trip to World Orphan Drug Congress, Europe. This week, Rick - Findacure’s CEO - and I attended World Orphan Drug Congress (WODC) in Barcelona, Spain. Now in its 10th year, WODC...

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