Blog

We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Libbie, our Projects and Communications Manager, on [email protected].

Finding a patient group

Receiving a rare diagnosis can be incredibly confusing and scary. Findacure is often contacted by patients desperately searching for more information and a community group to support them. While we actively refer people to the patient groups we work with, we don’t...

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Shout out for ‘Student Voices’

In this week's blog we hear why Polly Moyer - founder of Action for MdDS UK - loves judging our Student Voice essay competition and her top tips for those raring to take part in our recently launched 2018 round.The first time I was asked to join the judging panel for...

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Meet the team: Great Scottish Swim Aquathlon

This week’s blog continues our “Meet the team” blog series, introducing our brilliant fundraisers to the Findacure community. On 25th August, Charlotte Proud will be taking on a huge challenge to raise money for Findacure - braving a 800 metre swim in chilly Loch...

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Rare diseases: A holistic approach

How can more medical students and researchers become involved in rare conditions? What challenges will they need to overcome to be successful? In this week's blog, Hanusha Durganaudu from Monash University Malaysia explores these questions. His blog was originally...

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