Blog

We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Libbie, our Projects and Communications Manager, on [email protected].

Meet Ike, our summer intern

Meet Findacure’s summer intern, Ikeoluwa Akintola – or Ike for short. Ike has been busy re-writing guides for our e-learning portal to improve their accessibility and flow, and she has written today’s blog about her experiences at Findacure HQ. We are very grateful...

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Dinner date with the Freemasons

On Wednesday 30th May, Findacure’s fundraising officer, Katie, attended the Cambridgeshire Masonic charitable dinner to receive a certificate celebrating our grant from the Masonic Charitable Foundation. We were thrilled to recently receive a generous...

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Team Findacure hits up ECRD

The annual European Conference for Rare Diseases, organised by Eurordis, took place this year on Friday 11th and Saturday 12th May. The Findacure team headed to Vienna to present their MCDS-Therapy poster, meet other rare disease advocates, and learn from...

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Common things are common?

How can more medical students and researchers become involved in rare conditions? What challenges will they need to overcome to be successful? These were the questions answered by Ashleigh Draper, medical student at King’s College London, for our 2017 Student Voice...

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Undiagnosed

In the wake of Undiagnosed Children's Day, which took place on Friday 27th April, guest blogger Polly Moyer has written this week's article on the mistreatment and psychological consequences of being undiagnosed. Many people who are still waiting for a diagnosis will...

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