Blog

We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Taryn, our Communications Officer: [email protected]

Findacure takes on the Superhero Run!

[row][two-third] On Sunday, 17th May, Findacure enlisted 11 superheroes to don their capes and run through Regents’ Park to raise money to support our work with fundamental disease patient groups, as part of the ‘DoItForCharity’ Superhero Run. It was a fantastic...

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Meet our new Scientific Officer

This week’s blog post is an interview with Richard Thompson, our new Scientific Officer. He will be developing our new drug repositioning programme, and so here’s your chance to find out a little about him: [row][two-third] What were you doing before you joined...

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Treasure The Exceptions pt. 5

This is our fifth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...

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Treasure The Exceptions pt. 4

This is our fourth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...

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Treasure The Exceptions pt. 3

This is our third instalment from our guest blogger, who writes about different aspects to living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, with information kindly supplied by members of various patient...

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