We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.
Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!
If you would like to share your own story on our blog, please contact Taryn, our Communications Officer: email@example.com
[row][two-third] Here at Findacure we like to give all of our wonderful supporters the chance to meet the people behind the organisation, so today I will be giving you a bit of an insight into the work what my role as the Fundraising and Communications Officer has...read more
[row][two-third] What is a Scientific Officer, and what exactly do they do? This was the complex question I had to address on my first day with Findacure almost two months ago. In the intervening time I’ve spoken to a vast number of people, including patients,...read more
[row][two-third] We're so grateful to all the people who support Findacure through their fundraising, and we love being able to meet them and to introduce them to you. Today we're talking to Natalie Hughes. Natalie will be running the Royal Parks Foundation Half...read more
Pharmaceutical interest in rare diseases is on the rise, so we organised a training workshop last Friday for patient groups and pharma alike to discuss how the two can collaborate and work together. The 49 delegates were even split, with 16 patient groups and 15...read more
This is our sixth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...read more
[row][one-third][/one-third][two-third] For the final instalment of our Cross Your Own Oceans project [read Day 1 post here][read Day 2 post here], the team met on May 16th at ScreenWorks in Highbury. Unfortunately, illness struck the team again, and our numbers were...read more
[row][two-third] On Sunday, 17th May, Findacure enlisted 11 superheroes to don their capes and run through Regents’ Park to raise money to support our work with fundamental disease patient groups, as part of the ‘DoItForCharity’ Superhero Run. It was a fantastic...read more
This week’s blog post is an interview with Richard Thompson, our new Scientific Officer. He will be developing our new drug repositioning programme, and so here’s your chance to find out a little about him: [row][two-third] What were you doing before you joined...read more
This is our fifth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...read more
[row][one-third][/one-third][two-third] Over the next few months, we want to introduce you to Team Findacure, the brilliant men and women who are taking on challenges and adventures to raise the money which supports our work. Today we're meeting Katherine Thorogood,...read more
[row][one-third][/one-third][two-third] Following the successful launch of our BBC Children in Need funded ‘Cross Your Own Oceans’ project in March [click here to read the launch blog], the team met up on April 17th for our adventure day. Unfortunately, due to...read more
[row][two-third] This past Friday saw our sixth training workshop take place, on the topic of communications and PR for small patient groups. We had 40 delegates, from 29 patient groups, come together in the beautiful Grade II listed room at the Royal College of...read more