We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Mary Rose, our Head of Operations:

Rolex Fastnet Race 2015

This August we had the lovely Elin Haf Davies fundraise for Findacure by competing in the Rolex Fastnet Race, one of ocean's racing's greatest events. The race takes competitors across 600+ miles and up to five days battling the wind and trickly tidal conditions. In...

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Meet Emma, our Summer Volunteer

For the past two weeks, Findacure has been fortunate to have the lovely Emma volunteer for us in the office. In today’s blog we find out a bit more about her and her experience at Findacure. [row][two-third] What are you currently studying at University and why did...

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Findacure takes on the Superhero Run!

[row][two-third] On Sunday, 17th May, Findacure enlisted 11 superheroes to don their capes and run through Regents’ Park to raise money to support our work with fundamental disease patient groups, as part of the ‘DoItForCharity’ Superhero Run. It was a fantastic...

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