Blog
We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.
Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!
If you would like to share your own story on our blog, please contact Blayne, our Marketing and Engagement Manager: [email protected]
Repurpose-a-cure
[row][two-third] Drug repurposing is something we spend a lot of time thinking about at Findacure, and something that we will be spending more and more time talking about in the coming months. But what exactly is it, and why should rare disease patients care? In...
read moreHappy 3rd Birthday Findacure!
[row][two-third] Tomorrow marks Findacure’s three year anniversary! We’ve come a long way since we were registered as a charity by Dr Nick Sireau and Dr Anthony Hall on the 7th November 2012. Here are some of our highlights from the past year... 14th November 2014 –...
read moreTreasure The Exceptions pt.10 – Many Overlaps, No Surprises
This is our tenth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...
read moreRunning rings around the Royal Parks
[row][two-third] The morning of Sunday 11th October saw over 16,000 runners descend upon London’s Hyde Park, ready and raring to start the Royal Parks Half Marathon 2015. The 13 mile (or 21 km) route, which featured Wellington Arch, Buckingham Palace, Downing Street...
read moreMeet Libbie, Our New Fundraising & Communications Officer
[row][two-third] We have a new member of staff, Libbie Read, who joined the Findacure team last week as our new Fundraising & Communications Officer. In this post, we would like to introduce you to her. What were you doing before you joined Findacure? My last...
read moreTreasure The Exceptions pt.9 – Rare Toolkits / Advocacy part II
This is our ninth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...
read moreRaising Funds From The Crowd
It can be incredibly difficult to fundraise for rare diseases, especially from traditional sources of funding like trusts and foundations. Rare diseases often get overlooked for more common conditions, where the impact of funding is seen as more significant. This is...
read moreRolex Fastnet Race 2015
This August we had the lovely Elin Haf Davies fundraise for Findacure by competing in the Rolex Fastnet Race, one of ocean's racing's greatest events. The race takes competitors across 600+ miles and up to five days battling the wind and trickly tidal conditions. In...
read moreTreasure The Exceptions pt. 8 – Rare Toolkits
This is our eighth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...
read moreHow to make friends and repurpose drugs
When you are trying to find new treatments for rare diseases it is crucial that you have the right friends, with the right knowledge. With so much to learn about rare diseases, their treatment, and the patient experience, no one person can easily have all the...
read moreMeet Emma, our Summer Volunteer
For the past two weeks, Findacure has been fortunate to have the lovely Emma volunteer for us in the office. In today’s blog we find out a bit more about her and her experience at Findacure. [row][two-third] What are you currently studying at University and why did...
read moreTreasure The Exceptions pt.7 – Elliot, An Exceptional Ambassador
This is our seventh instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...
read more