We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Blayne, our Marketing and Engagement Manager: [email protected]


[row][two-third] Drug repurposing is something we spend a lot of time thinking about at Findacure, and something that we will be spending more and more time talking about in the coming months. But what exactly is it, and why should rare disease patients care? In...

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Happy 3rd Birthday Findacure!

[row][two-third] Tomorrow marks Findacure’s three year anniversary! We’ve come a long way since we were registered as a charity by Dr Nick Sireau and Dr Anthony Hall on the 7th November 2012. Here are some of our highlights from the past year... 14th November 2014 –...

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Running rings around the Royal Parks

[row][two-third] The morning of Sunday 11th October saw over 16,000 runners descend upon London’s Hyde Park, ready and raring to start the Royal Parks Half Marathon 2015. The 13 mile (or 21 km) route, which featured Wellington Arch, Buckingham Palace, Downing Street...

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Raising Funds From The Crowd

It can be incredibly difficult to fundraise for rare diseases, especially from traditional sources of funding like trusts and foundations. Rare diseases often get overlooked for more common conditions, where the impact of funding is seen as more significant. This is...

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Rolex Fastnet Race 2015

This August we had the lovely Elin Haf Davies fundraise for Findacure by competing in the Rolex Fastnet Race, one of ocean's racing's greatest events. The race takes competitors across 600+ miles and up to five days battling the wind and trickly tidal conditions. In...

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