Blog
We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.
Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!
If you would like to share your own story on our blog, please contact Blayne, our Marketing and Engagement Manager: [email protected]
How to make friends and repurpose drugs
When you are trying to find new treatments for rare diseases it is crucial that you have the right friends, with the right knowledge. With so much to learn about rare diseases, their treatment, and the patient experience, no one person can easily have all the...
read moreMeet Emma, our Summer Volunteer
For the past two weeks, Findacure has been fortunate to have the lovely Emma volunteer for us in the office. In today’s blog we find out a bit more about her and her experience at Findacure. [row][two-third] What are you currently studying at University and why did...
read moreTreasure The Exceptions pt.7 – Elliot, An Exceptional Ambassador
This is our seventh instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...
read moreMeet Louisa, our outgoing Fundraising & Communications Officer – and apply to be our new one!
[row][two-third] Here at Findacure we like to give all of our wonderful supporters the chance to meet the people behind the organisation, so today I will be giving you a bit of an insight into the work what my role as the Fundraising and Communications Officer has...
read moreTwo months in the life of a Scientific Officer
[row][two-third] What is a Scientific Officer, and what exactly do they do? This was the complex question I had to address on my first day with Findacure almost two months ago. In the intervening time I’ve spoken to a vast number of people, including patients,...
read moreMeeting Team Findacure: Natalie, Jo and Isla
[row][two-third] We're so grateful to all the people who support Findacure through their fundraising, and we love being able to meet them and to introduce them to you. Today we're talking to Natalie Hughes. Natalie will be running the Royal Parks Foundation Half...
read moreHow Rare Disease Patient Groups Can Work With Pharma
Pharmaceutical interest in rare diseases is on the rise, so we organised a training workshop last Friday for patient groups and pharma alike to discuss how the two can collaborate and work together. The 49 delegates were even split, with 16 patient groups and 15...
read moreTreasure The Exceptions pt.6 – JAM Packed
This is our sixth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...
read moreCross Your Own Oceans – Day 3
[row][one-third][/one-third][two-third] For the final instalment of our Cross Your Own Oceans project [read Day 1 post here][read Day 2 post here], the team met on May 16th at ScreenWorks in Highbury. Unfortunately, illness struck the team again, and our numbers were...
read moreFindacure takes on the Superhero Run!
[row][two-third] On Sunday, 17th May, Findacure enlisted 11 superheroes to don their capes and run through Regents’ Park to raise money to support our work with fundamental disease patient groups, as part of the ‘DoItForCharity’ Superhero Run. It was a fantastic...
read moreMeet our new Scientific Officer
This week’s blog post is an interview with Richard Thompson, our new Scientific Officer. He will be developing our new drug repositioning programme, and so here’s your chance to find out a little about him: [row][two-third] What were you doing before you joined...
read moreTreasure The Exceptions pt. 5
This is our fifth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...
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