We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Blayne, our Marketing and Engagement Manager: [email protected]

Meet our new Scientific Officer

This week’s blog post is an interview with Richard Thompson, our new Scientific Officer. He will be developing our new drug repositioning programme, and so here’s your chance to find out a little about him: [row][two-third] What were you doing before you joined...

read more

Treasure The Exceptions pt. 5

This is our fifth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger, pro bono. The information is supplied by members of various...

read more