Blog
We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.
Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!
If you would like to share your own story on our blog, please contact Blayne, our Marketing and Engagement Manager: [email protected]
First Findacure Patient Group Workshop – 24th January
This past Friday saw Findacure’s first patient group workshop take place at White & Case LLP in London, with over 40 people attending, representing 35 different patient groups and organisations. The focus of the event was on different funding sources that patient...
read moreQ&A with Dr Anthony Hall, co-founder of Findacure, about Fundamental Diseases
Featured in this month's Industry Insight, Dr Anthony Hall speaks to IPT about the importance of R&D into rare conditions, the lack of commercial and scientific interest historically encountered in this area, and the reasons why this situation is now changing....
read moreThe Guardian covers Findacure: the Fundamental Diseases Partnership
Read it here: Social enterprise Findacure aims to unlock new insights into rare diseases
read more