Blog

We produce a weekly blog to share what we’ve been up to, stories from the rare disease world, interesting info on our projects, and more.

Every week we put our fingertips to keyboards to bring you, our community, stories of what we’ve been up to, things we’ve found interesting, and updates from our projects. Released every Friday, our blog is also regularly written by guests who openly share their experiences. We hope you enjoy reading our little instalments!

If you would like to share your own story on our blog, please contact Taryn, our Communications Officer: taryn@findacure.org.uk

Why we love Rare Disease Day

There's just over one month until the biggest day in the rare disease calendar: international Rare Disease Day! As the excitement builds, we at Findacure have taken a moment to reflect on why we love this celebration of all things rare. And if you're looking to mark...

read more

2018 in review

In this week’s blog, we are delighted to look back on the jam-packed year of 2018. Click the links to find out more about each of our highlights, including video recordings of talks at all of our events! January Winners of our 2017 essay competition announced 2017 saw...

read more

Meet Shimon, our newest volunteer!

Hi Shimon. It would be great if you could tell us a little bit about yourself. I am currently in upper sixth and am completing the International Baccalaureate at Parkside Sixth. I study History, Physics and Anthropology at higher level as well as English, Maths and...

read more

Finding a patient group

Receiving a rare diagnosis can be incredibly confusing and scary. Findacure is often contacted by patients desperately searching for more information and a community group to support them. While we actively refer people to the patient groups we work with, we don’t...

read more

Shout out for ‘Student Voices’

In this week's blog we hear why Polly Moyer - founder of Action for MdDS UK - loves judging our Student Voice essay competition and her top tips for those raring to take part in our recently launched 2018 round.The first time I was asked to join the judging panel for...

read more