On 23rd September, Rick and Mary Rose attended Cambridge Rare Disease Network’s RAREsummit at the Wellcome Genone Genome Campus in Hinxton.
Cambridge is one of the UK’s leading cities for scientific and medical research, with a cluster of patient and advocacy groups, clinicians, life science networks and academics focused on rare diseases. It also happens to be the location of Findacure HQ. This is why, each year, we hold the Cambridge Rare Disease Showcase, a highlight of our social calendar held right in the heart of the hustle and bustle of this great city.
On 11th July, our Patient Group Engagement Manager, Libbie, ran a webinar entitled ‘Growing your patient community: identifying patients and groups online’.
On 21st June, Findacure hosted its peer mentoring summer meet-up at Hamilton House in London, with attendees travelling from as far afield as northern Scotland.