Drug Repurposing for Rare Diseases 2017

This week’s blog has been written by our Head of Research, Rick Thompson, reflecting on Rare Disease Day 2017 and our fourth annual conference. Tuesday, 28th February 2017 was the 10th annual Rare Disease Day – I hope it didn’t escape your notice. Every year it...

The Midlands Rare Disease Showcase

[row][two-third] This week, our Head of Research Rick, talks about Findacure and Birmingham Children’s Hospital’s collaborative event, The Midlands Rare Disease Showcase. This week Findacure did something unusual, and slightly daring – no, not departing...

Introduction to Patient Registries

Rare diseases pose great challenges for research, primarily because each condition affects so few people. Patients are dispersed around countries, around the world, and very little is known about how the condition progresses and affects individual people. Patient...

Collaborating for Cures

Rare diseases are leading the charge in research when it comes to collaboration. The unique selling point of this group of conditions is the willingness of all stakeholders to work together to achieve better health outcomes for patients. This is something we champion...