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Patient as Professor: Lessons to be learned from the rare diseases community
This week’s blog features another of the fantastic entries we received to our 2018 Student Voice essay competition. Here, Sarah-Ethel (Sally) Justus from Harvard Medical School explores what future doctors can learn from rare disease patients. When Elizabeth, a...
Dying to breathe – Comparing Idiopathic Pulmonary Fibrosis in the world’s largest economies
This week’s blog features another of the fantastic entries we received to our 2018 Student Voice essay competition. Here, Anna-Lucia Koerling from the University of Cambridge compares the diagnosis and delivery of treatments for Idiopathic Pulmonary Fibrosis...
Determination, open-mindedness, curiosity and communication: What future doctors could learn from patients with rare diseases.
With yesterday’s Rare Disease Day featuring the publication of our 2018 essay competition winner, we are taking the opportunity to share another of our fantastic entries in our blog today. This essay focuses on what future doctors can learn from rare disease...
The everyday impact of rare diseases: supporting your patient community
The impact of rare diseases go far beyond the physical – they have a significant mental and social impact too. But, in the quest to find treatments and address medical issues, these other areas are often forgotten about, pushed aside, and de-prioritised, leaving...