Leading a rare patient group

Leading a rare patient group

Our latest workshop on the 22nd January focused on the topic of leadership within a rare patient group. We all know that leadership is a skill we should be very aware of and try to be good at but sometimes it’s hard to know how to start thinking about your own leadership skills. In a patient group context when employees and volunteers are often busy with other things, leaders don’t always have time to reflect on and improve their practice.

2020 vision

2020 vision

My supply of mince pies is finally exhausted, which can only mean one thing – the new year is upon us. As we have returned to our desks at Findacure HQ this week, we have all been turning our thoughts to the year ahead. What will 2020 bring for Findacure and the...
Storytelling for patient groups

Storytelling for patient groups

On Wednesday 27th November, the 2019 peer mentoring cohort met in London to attend a training session led by Findacure trustee Andy Milligan, which focused on branding, marketing and how small charities can get their stories heard. Often when we hear the phrase...
Diving into drug repurposing

Diving into drug repurposing

While we have dedicated a lot of time to running our annual conference to showcase excellence in the field, there has been less emphasis on educating the patient community. We thought that it was about time this changed, so on Tuesday 5th November we partnered with the MCDS-Therapy project to host our Diving into Drug Repurposing workshop at White and Case in London. This day-long event aimed to help patient organisations understand: