Film-a-cure

[row][two-third] As you may remember from our blog in March, we at Findacure have been partnering with rare disease patient organisations to support their crowdfunding efforts. Shortly after launching our joint crowdfunding campaign with the Children’s Hyperinsulinism...

The financial cost of rare diseases

A crucial part of our social impact bond (SIB) project is developing an understanding of the costs of rare diseases. Because the SIB is based on saving money for the NHS, our cost of illness modelling estimates the current financial cost of specific rare diseases in...

Treasuring our volunteers

Volunteering for a small charity like Findacure can make a big difference to our overall productivity. We are currently searching for volunteers to help us with a range of activities, including marketing, design, communications, fundraising, project organisation,...

Final Ocean Crossing

[row][two-third] At the start of March, we brought together our group of teenagers once more for the final day of the Cross Your Own Oceans project. [Click here to read the launch blog] We met mid-morning near Waterloo station, to kick off our adventure day with a...

Fund-a-cure for CHI

[row][two-third] Collaboration is key for rare disease research. Collaboration between multiple stakeholders brings together a wide range of perspectives and experiences, leading to more effective and appropriate research. This is something we aim to promote in all of...

The Patient Group Handbook

[row][two-third] We are delighted to announce that The Patient Group Handbook, edited by our founders, has been published! The book consists of 25 practical chapters about research and drug development in the rare diseases field, including: How to set up and manage a...