The London Marathon: My Story

In this weeks blog, Stuart Brien shares his story of running in the London Marathon for Findacure, on Sunday 23rd April.  Well, the day finally arrived and I was up early and ready to go. A hearty breakfast of porridge and banana, and I was on my way to Greenwich to...

Meet our empowerment advisory committee!

The keen Findacure blog readers among you will have seen a blog late last year introducing Deborah, a member of our brand new Empowerment Advisory Committee. We are proud to have established this Committee late last year in an effort to bring more of the rare disease...

Meet Deborah: Empowerment Adviser

We are pleased to announce the establishment of our first Empowerment Advisory Committee, made up of rare disease patients, carers, and advocates. In this week’s blog, we would like to introduce one of our committee members and her rare story. [row][three-fourth] Hi,...