Meet the team - Part 4

The science of rare diseases – our revamped scientific advisory committee

by Rick Thompson | Meet the team, Rare disease world

Scientific advice is crucial in the rare disease world. With few researchers working on any given rare disease it is important for patient groups to build connections with the scientific community. This helps them to understand their disease, gives them a platform to...

Meet our empowerment advisory committee!

by Guest | Meet the team

The keen Findacure blog readers among you will have seen a blog late last year introducing Deborah, a member of our brand new Empowerment Advisory Committee. We are proud to have established this Committee late last year in an effort to bring more of the rare disease...

Meet the team: Cambridge Half Marathon

by Mary Rose Roberts | Meet the team

This week’s blog begins our new ‘Meet the team’ blog series. One of the most vital parts of charity life is having fundraisers, and we want to take the time to fully thank and appreciate our amazing Findacure fundraising team for all the hard work...

Meet Deborah: Empowerment Adviser

by Guest | Meet the team

We are pleased to announce the establishment of our first Empowerment Advisory Committee, made up of rare disease patients, carers, and advocates. In this week’s blog, we would like to introduce one of our committee members and her rare story. [row][three-fourth] Hi,...

Meet Mary Rose, Our New Events Officer

by Mary Rose Roberts | Meet the team

We have a new member of staff, Mary Rose Roberts, who joined the Findacure team last week as our new Events Officer. In this post, we would like to introduce you to her.What were you doing before you joined Findacure?Before joining Findacure, I was busy finishing my...

Meet Libbie, Our New Fundraising & Communications Officer

by Libbie Read | Meet the team

[row][two-third] We have a new member of staff, Libbie Read, who joined the Findacure team last week as our new Fundraising & Communications Officer. In this post, we would like to introduce you to her. What were you doing before you joined Findacure? My last...