Meet our empowerment advisory committee!

The keen Findacure blog readers among you will have seen a blog late last year introducing Deborah, a member of our brand new Empowerment Advisory Committee. We are proud to have established this Committee late last year in an effort to bring more of the rare disease...

Meet Deborah: Empowerment Adviser

We are pleased to announce the establishment of our first Empowerment Advisory Committee, made up of rare disease patients, carers, and advocates. In this week’s blog, we would like to introduce one of our committee members and her rare story. [row][three-fourth] Hi,...

Meet Mary Rose, Our New Events Officer

We have a new member of staff, Mary Rose Roberts, who joined the Findacure team last week as our new Events Officer. In this post, we would like to introduce you to her.What were you doing before you joined Findacure?Before joining Findacure, I was busy finishing my...