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Rare diseases actually are all around

Rare diseases actually are all around

Ok, so it might not be as good of a catch phrase as Hugh Grant’s ‘Love actually is all around,’ but hear me out because it’s true. We all know that rare diseases are individually rare, but collectively common. As it turns out, they are pretty commonly found all around us too – we just don’t always notice them straightaway. This week’s blog highlights just how common rare diseases are in everyday life!

Seeking similarities in difference: How COVID-19 has highlighted the dual importance of individual experience and unifying commonality in rare disease research

Seeking similarities in difference: How COVID-19 has highlighted the dual importance of individual experience and unifying commonality in rare disease research

This week’s blog was written by Remarez Sheehan, a 4th year medical student from the University of Oxford. Remarez entered The 2020 Student Voice Prize and was shortlisted for the brilliant essay “Seeking similarities in difference: How COVID-19 has highlighted the dual importance of individual experience and unifying commonality in rare disease research.” Read Remarez’s essay now!

Experience Huntington’s Disease Alliance’s Family Matters campaign

Experience Huntington’s Disease Alliance’s Family Matters campaign

This week’s blog was written by four Huntington’s disease charities across the UK and Ireland, who are working together to raise awareness of the impact of Huntington’s disease, not just on individuals, but on families too. The Huntington’s Disease Alliance UK and Ireland launched the Family Matters campaign at the beginning of May 2021 with the hopes of promoting an improved understanding of the unique pressures of the disease upon the families it affects. View the campaign!

Perks of a pandemic: lessons in improving the delivery of clinical rare disease research

Perks of a pandemic: lessons in improving the delivery of clinical rare disease research

This week’s blog was written by Rosaline de Koning, a 4th year medical student from Oxford University. Rosaline entered The 2020 Student Voice Prize and was shortlisted for her brilliant essay “Perks of a pandemic: lessons in improving the delivery of clinical rare disease research.” Read her essay now and be sure to enter The 2021 Student Voice Prize when it returns this Autumn!

The benefits of working with known drugs in the search for rare disease treatments

The benefits of working with known drugs in the search for rare disease treatments

This week’s blog was written by our 2020-2021 Corporate Partner, Healx! This is the first of their six-part blog series, which will explore the power of drug repurposing in rare disease from a wide variety of perspectives.

Healx is hosting a “Kickstart Drug Repurposing: Finding Treatments for your Rare Disease through Drug Redevelopment” workshop at our virtual Drug Repurposing for Rare Diseases 2021 Conference. Get to know their team and claim your free ticket now to join us on the 15th – 16th June!