The past few weeks have certainly been varied for the team here at Findacure! Taryn, Mary Rose, and Rick have all been out and about raising awareness of rare diseases!
The Power in a Name: Teaching future doctors the value of providing a definitive diagnosis in the support of patients with rare disease
This week’s blog features one of the outstanding entries we received for our 2018 Student Voice essay competition. Here, Megan McGlone from the University of Glasgow explores the impact of diagnosis on rare disease patients’ ability to identify with a community and receive the support they so urgently require.
This week’s blog is written by a member of the rare disease community, David Ross, who is currently taking part in a clinical trial for Cowden Syndrome in the hope that it will improve the lives of others suffering from the condition.
In this week’s blog Rick tells us all about his day-long visit to the Eurordis Winter School in Paris, where he gave a talk on drug repurposing as a strategy for rare disease patients.