Taking place from 19 – 23 January 2020 in London, UK, for the first time the world’s leading experts in EB research, clinical management, and the EB Community will be brought together in one place – the 2020 EB World Congress.
On Friday 2nd August, team Findacure held a strategy day at Mary Rose’s house to discuss our aims over the next year, accompanied by her adorable cat, Jasper.
Seven years in the making: SONIA 2 and DevelopAKUre results analysed and positive trends identified!
Findacure would like to congratulate our co-founder Nick Sireau and office mates the AKU Society on the news that analysis of data from the SONIA 2 clinical trial has now been completed and very positive trends have been identified!
The past few weeks have certainly been varied for the team here at Findacure! Taryn, Mary Rose, and Rick have all been out and about raising awareness of rare diseases!