The Student Voice Prize 2019 proved to be our most popular yet. We received more entries than ever before, from 19 different universities in 6 different countries. The standard was high as ever and all of the judges were very impressed with the quality of the entries…
The recent opening of The Zayed Centre for research, a dedicated rare disease centre which is a part of Great Ormond Street Hospital, is incredibly exciting for the rare disease community as a whole.
On 23rd September, Rick and Mary Rose attended Cambridge Rare Disease Network’s RAREsummit at the Wellcome Genone Genome Campus in Hinxton.
Taking place from 19 – 23 January 2020 in London, UK, for the first time the world’s leading experts in EB research, clinical management, and the EB Community will be brought together in one place – the 2020 EB World Congress.
On Friday 2nd August, team Findacure held a strategy day at Mary Rose’s house to discuss our aims over the next year, accompanied by her adorable cat, Jasper.