Corporate giving

By supporting us, your organisation has the power to transform the lives of millions of rare disease patients and their families

Findacure works to professionalise rare disease patient groups, helping them to become strong long term partners for industry. Our events highlight excellence in the field of rare diseases wherever we find it. We rely on the generosity of companies and organisations to fund our work, enabling us to provide vital support to help patient groups advance knowledge, awareness, and treatments in their conditions.

There is great value in all corporates have to offer, from their time and services, to resources and financial support. Findacure is always eager to develop corporate relationships that are mutually beneficial. We welcome support in a wide variety of forms, recognising that each relationship is unique. We ensure complete transparency in all our corporate relationships, with flexible benefit packages dependant on the wishes of your company. Collaboration between charity and corporates is vital to successfully build a rare disease community that supports, informs, and works together for the betterment of all rare conditions. Together, we can transform the lives of millions of people who are living with a rare disease.

Don’t just take our word for it, meet Annabel from Costello Medical Consulting

“Our ongoing collaboration with Findacure has been, and continues to be, exceptionally rewarding and our staff that volunteer to work on this project obtain immense job satisfaction from the opportunity. It is a true pleasure to work with such an enthusiastic and passionate charity, who are playing an instrumental role in promoting collaboration and developing treatments for patients with rare diseases. The work we do together spans health economics, publications and design – allowing us to share a range of expertise and encouraging people from different teams within Costello Medical to work together. Furthermore, Findacure’s commitment to promoting interactions between stakeholders in the rare disease area is fantastic; their networking events and scientific conferences are the perfect place to meet others from industry, as well as those from the public sector, and they are an immensely valuable opportunity to hear from patients themselves.”

How do I get involved?

Grant giving and charitable donations

As a charitable organisation dedicated to transforming the lives of rare disease patients, we rely on the generosity of companies and organisations to fund our projects. Corporates can provide financial support with an unrestricted grant, specific funding for one of our projects below, or through their own Charity of the Year scheme.

Our empowerment projects have successfully transformed many struggling patient groups into confident experts in their condition and valuable partners in research, meaning that funding our work has an impact that is significantly greater than the cost.
We are incredibly grateful for donations of all sizes and would be delighted if your organisation would consider providing grant support to enable us to continue our vital work with rare disease patient groups. To discuss our projects and potential funding opportunities, please get in touch with our Fundraising Manager via [email protected].

Training workshops

Our day-long workshops are a great opportunity for patient groups to learn together about specific topics.

Webinars

Bitesize webinars offer practical, hands-on guidance for patient groups from the convenience of their homes.

Peer mentoring

Our mentoring programme provides one-to-one support for new patient groups or those facing a challenge.

E-learning portal

Our portal is an information hub for patient groups. It contains topic-specific guides, case studies, and forums.

Sponsorship

Networking events are an essential part of what we do; breaking down barriers between patients industry and researchers to promote interaction. Our networking events and conferences provide a space for all rare disease stakeholders to form new collaborations, share ideas, and spread awareness of rare diseases.

We offer sponsorship packages for the exciting events below and would be delighted if your organisation would like to get involved. By supporting us, you can show your support for the rare disease community, raise your company profile within the UK’s life-sciences industry, and reinforce your position as a key player in the rare disease sector. Our sponsorship packages vary to meet your needs and include benefits such as increased brand awareness and valuable networking opportunities. To discuss the benefits of supporting us, please get in touch with our Events Manager via [email protected].

Conferences

Marking Rare Disease Day, our annual conference explores the latest developments rare disease research, namely in drug repurposing.

Showcases

Our Showcase networking events highlight and celebrate rare disease progress in local regions. Look out for one coming to a city near you!

Essay competition

Our ‘Student Voice’ essay competition encourages the researchers and medics of the future to engage with rare disease issues.

Pro bono

Offering your services to Findacure is an incredibly valuable way your organisation can get involved with our work. Collaboration is at the heart of all we do and we welcome potential partnerships with companies from all backgrounds. Just some of the areas of particular benefit to us are legal, financial, marketing, fundraising, health economic, and clinical trial advice. Please contact our CEO via [email protected] to discuss potential pro bono support and collaboration opportunities.

Fundraising

There are plenty of fun and fantastic ways for your organisation to get involved in fundraising for Findacure. From marathons and sky dives, to pub quizzes and street collections, we aim to have something to suit everyone. Your team can take on a sponsored challenge, support one of our simple ongoing appeals, volunteer your time, or organise your very own fundraising event! Visit our fundraising page to find out more.

We are incredibly grateful to be supported by the below corporates in 2018

Sponsorship of the Drug Repurposing for Rare Diseases conference

Sponsorship of the Cambridge Rare Disease Showcase

Unrestricted grant support for the patient empowerment programmes

Grant support for the e-learning portal

Grant support for the peer mentoring programme

Grant support for the workshops programme

Pro bono support

A huge thank you to our previous corporate supporters

2017

Amgen
BioMarin
Bates Wells Braithwaite
Collaborative Drug Discovery
Comradis
Costello Medical Consulting
Cresset Repharm
GSK

Healx
High Force Research
Horizon Pharma
Illingworth Research Group
Kudos Health
LifeArc
Modern Tribe
MRC Technology

Novartis
One Nucleus
Orphanet Journal of Rare Diseases
Oxford PharmaGenesis
PharmacoMedics
Sanofi Genzyme
Shire

Sobi
Takeda
TranScrip
Vertex Pharmaceuticals
Whiskers LLP
White & Case

2016

Abcam
Alexion
Comradis
Congenica
Costello Medical Consulting
Display Wizard
Domainex
Elsevier
Google

Healx
Hogan Lovells
Information Forum
Labstract
Linguamatics
Little Cupcake Company
Little Robot
Napp Pharmaceuticals
New College of Humanities

Numbers for Good
One Nucleus
Oxford PharmaGenesis
Orphanet Journal of Rare Diseases
Pharmacomedics
Raptor
R&R Saggers
Sanofi Genzyme

Scotsdales
SOBI
Sookio
Takeda
TranScrip
Wasps Legends
Whiskers LLP
White & Case LLP

2015

Candis Magazine
Congenica
Costello Medical Consulting
Diorama Studio
Elsevier
Genzyme
Hogan Lovells LLP
Labstract
Linguamatics

Napp Pharmaceuticals
Numbers for Good
Oliver Wyman
Sony Mobile
Stone King LLP
TranScrip
White & Case LLP
Women Hack for Non-Profits
WorkSpace

2014

Fundacion Genzyme
Hogan Lovells
London Business School
London School of Economics
Sanofi
White & Case