The everyday impact of rare diseases: supporting your patient community
17th January, 2019 at 10:00 am - 4:00 pm
Attendees can expect to hear case studies from patient organisations on their various support initiatives, and take part in group work sessions aimed to help patient groups better understand and meet the needs of their distinctive communities.
Anyone with an interest in rare diseases is welcome to attend. The workshop is free to attend and lunch and refreshments will be provided. Findacure will reimburse travel expenses for rare disease patients, patient groups and charities, up to the total value of £75.00 per person, contingent upon the production of valid receipts. Read more on our expenses policy here.
Please note, spaces at this workshop are limited. Therefore, we kindly request that you only sign up for the event if you are confident you are able to attend. If you have already registered and find yourself unable to make it, please contact [email protected].