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The everyday impact of rare diseases: supporting your patient community

17th January, 2019 at 10:00 am - 4:00 pm

Findacure is delighted to announce its first training workshop of 2019, which will focus on how patient groups can help support their patient communities through the everyday impact of living with a rare condition.

Attendees can expect to hear case studies from patient organisations on their various support initiatives, and take part in group work sessions aimed to help patient groups better understand and meet the needs of their distinctive communities.

Anyone with an interest in rare diseases is welcome to attend. The workshop is free to attend and lunch and refreshments will be provided. Findacure will reimburse travel expenses for rare disease patients, patient groups and charities, up to the total value of £75.00 per person, contingent upon the production of valid receipts. Read more on our expenses policy here.

Please note, spaces at this workshop are limited. Therefore, we kindly request that you only sign up for the event if you are confident you are able to attend. If you have already registered and find yourself unable to make it, please contact [email protected].


Mary Rose Roberts


Hamilton House
Mabledon Place
London,WC1H 9AZ
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