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The Glasgow Rare Disease Showcase

10th October at 10:00 am - 5:00 pm

[Image description: A photograph of two people stood up talking at a Findacure conference. Both people are smiling as though they are laughing with each other.]

October will see the Findacure team crossing borders to celebrate rare disease projects in Scotland! Our Glasgow Rare Disease Showcase will unite the rare disease community and provide an opportunity for patient groups, researchers, clinicians, and the life sciences industry to come together as equals and share their rare disease stories.


09:30 – Registration

10:00 – Welcome

10:10 – Introduction to Findacure
Dr Rick Thompson   CEO, Findacure

10:30 – Spinal muscular atrophy: progress and challenges in drug development for a rare neurological disease
Dr Ewout Groen   Postdoctoral Researcher, Gillingwater Group, University of Edinburgh

11:00 – A small fish in a large pond
Tracy Milne   Founder, Alfie Milne Lymphangiomatosis Trust

11:30 – Tea break

12:00 – Early access programs
Tom Watson   Executive Vice President, Bionical

12:30 – Lightning talk session

13:00 – Lunch

14:30 – Living with lyme disease: a patient’s perspective
Morven-May MacCallum

15:00 – The Office for Rare Conditions, Glasgow: progress and developments
Dr Martina Rodie   Consultant Neonatologist, Office for Rare Conditions, Glasgow

15:30 – Comfort break

15:45 – Lightning talk session

16:15 – Rare disease policy in Scotland: Q & A panel session

17:00 – End of Showcase

Download the full programme, including lightning talks

The showcase is open to anyone with an interest in rare diseases and lightning talk proposals are welcome from all delegates. Calls for lightning talks will be open until early September and can be put forward during the registration process.

We are also very pleased to offer a number of exhibition stands to patient organisations, completely free of charge. If you’d like the opportunity to exhibit at the showcase, please complete this form.

If you have any questions or are interested in sponsorship opportunities, please contact [email protected].

With thanks to our sponsors:




We would like to thank our sponsors for providing financial support for The Glasgow Rare Disease Showcase. This event is solely organised by Findacure and our sponsors have not determined the content.


10th October
10:00 am - 5:00 pm
Event Category:


Mary Rose Roberts


University of Strathclyde Technology and Innovation Centre
99 George Street
Glasgow,ScotlandG1 1RD
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