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Online workshop | Getting heard above the noise: making effective use of social media

23rd June, 2020 - 25th June, 2020

[image description: photo showing a man sitting down at a workshop. He has a smile on his face and is looking at something off camera]

Findacure is delighted to announce its next online workshop, which will provide support and guidance to rare disease patient groups looking to expand their knowledge on using social media.

Taking place in interactive 2-hour sessions across three days, the workshop will delve into three key topics: the ABC’s of using social media; communicating for impact; and top tips for running a social media campaign. 

This workshop will be particularly useful for patient groups who are new to, or unfamiliar with, social media platforms and those looking to refine their organisation’s message.

Attendees will gain the most benefit by attending all three days of the workshop, however you can also sign up for each session independently. As spaces are limited, we politely request that only one member from each organisation registers to attend.

11:00am - 1:00pm, Tuesday 23rd June

Day one of our workshop will provide an introduction to social media, looking in-depth at popular social media channels and how they work, as well as the dos and don’ts for using them. We will be joined by social media experts, Philip Saich (Postscript) and Jack Stevens (Cookie Cut Media).

What will be covered?

 The benefits of using social media as a rare disease patient group
An overview of prominent social media platforms including Facebook, Twitter, LinkedIn, Instagram and more
 Best practice for using social media as an organisation
– Dealing with challenging encounters on social media
– Free and low cost tools to help social media management and content creation

11:00am - 1:00pm, Wednesday 24th June

Following on from day one, the second day of our workshop will look at how patient groups develop their communications to ensure their message resonates with their audience. We will be joined in this session by Andy Milligan, a leading brand and business consultant, and trustee of Findacure.

What will be covered?

 Determining your organisation’s identity and voice
 Refining your message for maximum impact
– Tailoring your communications to reach different audiences
– Identifying which social media platforms your organisation should be investing in

11:00am - 1:00pm, Thursday 25th June

The final day of our workshop will look at how patient organisations approach planning and executing a social media campaign, whether it be for an awareness day, a call to arms, crowdfunding or more. This session will be delivered by digital marketing expert, Sue Keogh (Sookio). 

What will be covered?

 Defining a social media campaign
 Identifying a suitable project or message for a social media campaign
– How to set campaign goals
– Running a successful and impactful campaign
Ensuring maximum reach

The workshop will be hosted on Zoom and joining details will be sent to attendees upon registration. When registering, please ensure you select a ticket for each session you wish to attend. 

Findacure would like to thank The National Lottery Community Fund for providing funding for The Empowerment Programme.


23rd June, 2020
25th June, 2020
Event Category:


Mary Rose Roberts