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Online workshop | Supporting your community: mental health and wellbeing

23rd March - 25th March

[image description: photo of two women sitting next to each other engaged in conversation at a table]

Findacure is pleased to announce its next online workshop, which will provide guidance and practical advice to patient groups seeking to better support the mental health of their respective rare communities.


Taking place in 90-minute interactive sessions across three days, the workshop will delve into how patient groups can best prepare themselves to meet the mental health needs of their community, how to support patients and families going through challenging circumstances, and showcase examples of mental health projects already taking place in the field. 

Attendees will gain the most benefit by attending all three days of the workshop, however, you can also sign up for each session independently.

As spaces are limited, we politely request that only one member from each organisation registers to attend.


11:00am - 1:00pm, Tuesday 23rd March

Day one of our workshop will introduce the impact that living with a rare condition can have on mental health, both for patients themselves and families or carers. The session will also give an overview of ready-made resources to help organisations support their communities, and provide some top-tips to help ensure patient groups have approrpiate safeguarding procedures in place for tackling mental health issues.

What will be covered?

  • How different stages of the rare disease journey can impact our mental health
  • The unique mental health experiences faced by patients, parents, carers and siblings
  • Identifying and utilising mental health resources
  • Best practice for preparing and safeguarding your organisation

11:00am - 1:00pm, Wednesday 24th March

In day two of our workshop, we will hear from fellow patient groups and charities as they highlight how they have approached mental health projects. The session will provide examples of how patient groups can design and develop support services for their respective communities, and how to tailor activities for distinct audiences such as patients, parents or siblings. 

What will be covered?

  • Examples of patient-group led mental health projects
  • Best practice for running mental health support services
  • Ensuring safety, security and confidentiality
  • The importance of offering mental health support which meet the distinct needs of different stakeholders in your community

11:00am - 1:00pm, Thursday 25th March

The final day of our workshop will focus on how to  support patients and families facing serious illness and all that follows. The session will guide patient groups through approaching some of the toughest experiences – including receiving a lifechanging diagnosis, bereavement and grief – and how to be there for their community. 

What will be covered?

  • The role of patient groups in supporting families through serious illness, grief and bereavement 
  • Best practice in supporting patients, parents, carers and family members
  • How to approach difficult conversations

The workshop will be hosted on Zoom and joining details will be sent to attendees upon registration. When registering, please ensure you select a ticket for each session you wish to attend. 

With thanks to our funders 


23rd March
25th March
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