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RareChat | Patient group experiences of using data

26th May at 10:00 am - 11:30 am

RareChat | Patient group experiences of using data


During our next RareChat on Wednesday 26th of May at 10am, we will be discussing the benefits and complexities of data use within patient groups.

Data is at the centre of what patient groups do; it helps them to better understand their communities, build projects and services, demonstrate impact and drive research. It can be used in so many different ways that often the topic itself can be overwhelming and confusing. Yet when properly utilised it can help patient groups be more efficient in their practices and more understanding of their communities.

    Join this RareChat to discuss:

    • How you use data in your patient group
    • Any concerns you have over data collection
    • How you use data to inform the building of your products and services

    Claim your free ticket now to share your thoughts and insights with your fellow patient group leaders!