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Virtual Event | NHS England and NHS Improvement: UK Framework Action Plan Discussion

20th July at 10:00 am - 12:00 pm

Join us on 20th July from 10am – 12pm, as we sit down with NHS England and NHS Improvement for a two-hour discussion on the UK Rare Disease Framework Action Plan.

NHS England and NHS Improvement wants to hear from YOU, rare disease patient groups, patients and healthcare professionals, on which improvements need to be made to rare disease care, treatment and research over the next five years.

This is your chance to share your thoughts, ideas and priorities with those who are implementing the UK Rare Disease Framework Action Plan so that you can be a part of the change you wish to see.

Need a little refresher before the discussion?

Read our blog “What the new UK Rare Disease Framework means for you

Organiser

Mary Rose Roberts
Email:
projects@findacure.org.uk