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Webinar: building an international patient registry

15th January at 3:00 pm - 4:30 pm

[Image description: Graphic advertising the international patient registries webinar]

Findacure is excited to announce our next webinar – ‘Building an international patient registry‘ – hosted in collaboration with Pulse Infoframe.

Following on from our registries workshop in September 2019, our webinar will focus on how to set up or expand patient registries on a global level. As experts on international registries, our speakers from Pulse Infoframe will discuss: the benefits or running an international registry; key considerations, rules and regulations that are involved with international registries; associated challenges; and top tips for patient groups looking to develop these kinds of databases.

The webinar will take place at 3:00pm – 4:30pm, Wednesday 15th January on our GoToWebinar platform. The webinar is free to sign up to, but spaces are limited to 100 people.

If you would like to brush up on your knowledge before the webinar, check out our new e-learning guide on building patient registries.


15th January
3:00 pm - 4:30 pm
Event Category:


Philippa Norman