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Webinar | Building your patient group data to drive research

29th July at 3:00 pm - 4:30 pm

[image description: graphic advertising the building your patient group to drive research webinar]

Findacure, Aparito and Pulse Infoframe are excited to announce their joint webinar –  Building patient group data to drive research in rare diseases.

Data is increasingly at the forefront of science and medical research. The development of new drugs requires an in depth understanding of not only the science of a disease, but also its impact on patients.

This is of even greater importance in the world of rare diseases where both research and patients are scarce. Patient groups occupy an important niche, as they understand the patient experience of disease and coordinate any existing research effort.

Hosted in collaboration with Aparito and Pulse Infoframe, our webinar examines the ways in which patient groups are able to build their own rare disease datasets to drive research and make themselves a crucial partner to industry. We will explore some of the new technologies and opportunities that are available to put these patient community datasets at the forefront of cutting-edge research.



29th July
3:00 pm - 4:30 pm
Event Category:


Philippa Norman