Webinar | Ensuring inclusive communications around genetics
21st April at 11:00 am - 12:30 pm
Why are genetics an important topic for the rare disease community?
Genetics is complex, and talk of genetics, and even science, can turn many people off from engaging with clinicians or self-management of their conditions.
Finding ways to communicate genetics and inheritance clearly, and accessibly is crucial to help rare patients and their families. This is an even more vital consideration when certain genetic predispositions mean that a condition is more prevalent within a different geography, race or culture.
Ensuring that your information and support accounts for the beliefs and practices of that community, and is delivered in a manner that is relevant to them, can make the difference between success and failure.
This webinar will:
- Highlight the role of genetics as both a tool to access diagnoses and understanding of rare conditions, and a barrier to understand and discuss these diseases and their inheritance.
- Highlight case studies of what others in the rare community are doing to support with genetic diagnoses
- Signpost to pre-existing resources that your patient organisation can access
With thanks to our funder