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November 2021
Online workshop | Getting involved in research and trial design
Join us from the 30th of November to the 2nd of December for our next workshop | Getting involved with clinical research and trial design!
Find out more »December 2021
Webinar | Maximising engagement with healthcare professionals
Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCP's in the most beneficial way. Most rare diseases are not concentrated in one area or country and do not affect one singular body system, which makes finding healthcare professionals (HCPs) or specialists who understand them a real challenge for patients and patient organisations. Yet, it is often a top strategic priority for patient organisations to find and engage with these…
Find out more »February 2022
The International Rare Disease Showcase
While COVID-19 brought social isolation to many, it also opened up the world through digital meetings and connections – in this year’s showcase we want to highlight those international collaborations that are aiming to drive the field of rare diseases forward, as well as studying the differing impact and challenges of working in rare disease in different territories around the world.
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