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June 2021

Drug Repurposing for Rare Diseases 2021

15th June - 16th June
[image description: photo of a young girl smiling holding a sign that says why she supports drug repurposing]

Findacure’s Drug Repurposing for Rare Diseases Conference is back for an eighth year, and this time, it’s gone virtual!  

Naturally, this year’s conference will be a little different. COVID-19 has forced us online, but in grabbing the word’s attention, it has also become the poster boy for the power of drug repurposing. In a matter of months, scientists successfully repurposed dexamethasone to treat COVID-19, so why can’t the same urgency be applied to rare diseases? 

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RareChat | Community fundraising through COVID-19 and beyond

23rd June at 2:00 pm - 2:30 pm

During our next RareChat on Wednesday the 23rd June we will be discussing patient group experiences of community fundraising since the onset of the coronavirus pandemic in March 2020, and how this has shaped their future approaches to fundraising. At the start of the pandemic many patient groups that had previously relied on their communities for the majority of their funding found themselves in challenging circumstances as furlough, job losses, caring responsibilities and the reality of life in lockdown made…

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July 2021

Making data work for you: the basics of data collection and handling for patient groups

7th July at 11:00 am - 9th July at 1:00 pm

Findacure is pleased to announce its next online workshop, which will provide guidance and practical advice to patient groups seeking to better understand their data collection practices to make their data work better for them. Taking place in two hour interactive sessions across three days, the workshop will delve into why and how data should be collected, the key regulations and best practice for approaching data storage and use, and ways that data can be utilised to inform key projects…

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