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July 2020

Webinar | What does early access actually mean?

15th July at 3:00 pm - 4:30 pm
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Findacure and Metabolic Support UK are excited to announce their first joint webinar - What does early access actually mean? - supported by Bionical Emas.Early access programmes allow patients to access drugs which are not yet fully licenced, but where data suggests could make a transformative difference to their condition. Known by many names, including compassionate use, these programmes help to provide vital care to patients while the regulatory process is finalised, and have the potential to provide attentional data…

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Webinar | Building your patient group data to drive research

29th July at 3:00 pm - 4:30 pm
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Join Findacure, Aparito and Pulse Infoframe for an informative webinar on building patient group data to drive research in rare diseases.

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