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July 2019

Growing your rare disease patient group: Identifying patients and groups online

11th July at 10:00 am - 10:45 am
[Image description: A photograph of two people hugging at a Findacure workshop. They are hugging like they are good friends who haven’t seen each other in a while.]

Calling all rare disease patient groups! Are you hoping to grow your group’s patient community? Tune into our webinar to find out how you can identify and reach out to patients online. There are two main ways of growing your patient group’s community online: building an online presence (e.g. through a website and social media) to make it easier for patients and families to find you; and actively identifying and reaching out to patients. This webinar will cover the second…

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August 2019

The Cambridge Rare Disease Showcase

8th August at 6:45 pm - 9:00 pm
Espresso Library, 210 East Road
Cambridge, CB11BG
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[image description: two women engaged in conversations ]

Platinum Silver Our Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. As a world leader in rare research, exceptional examples of rare disease practice can be found all over the country. Our touring event series heads to local regions to give them the attention they deserve. Join Findacure for the annual Cambridge Rare Disease Showcase – a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs. The event will…

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Summer Skydive

31st August
North London Skydiving Centre, Block Fen Drove, Wimblington, Chatteris
March, Cambridgeshire PE15 0FB
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[image description: photograph of skydivers raising money for Findacure]

Take part in our summer skydiving spectacular! Calling all daredevils and thrill seekers: Now is your chance to sign up for the adrenaline rush of a lifetime! Following the success of our 2018 Skydive, Findacure will once again see our bravest supporters launch themselves from a plane at over 13,000 feet for a worthy cause. Sound interesting? Skydiving may just be the feat for you! We will be on hand to make sure you are fully prepared for your dive.…

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October 2019

The Manchester Rare Disease Showcase

8th October at 10:00 am - 4:00 pm
Bridgewater Hall, Lower Mosley Street
Manchester, M2 3WS United Kingdom
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[image description: a woman stands laughing amongst a crowd of people]

Platinum Silver Our Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. As a world leader in rare research, exceptional examples of rare disease practice can be found all over the country. Our touring event series heads to local regions to give them the attention they deserve. Join Findacure for The Manchester Rare Disease Showcase - a day long conference celebrating rare disease developments in Manchester and North West England.The event will take place on…

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