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January 2021

Webinar | Natural history studies for rare diseases: the importance of collecting real-world data from patients to enhance the development of therapies

20th January at 3:00 pm - 4:30 pm
Natural history studies for rare diseases: the importance of collectin real-world data from patients to enhance the development of therapies banner image

Findacure is teaming up with AI-company Healx, to deliver an informative webinar on natural history studies in rare diseases on 20th January at 3:00pm GMT!

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April 2021

Webinar | Ensuring inclusive communications around genetics

21st April at 11:00 am - 12:30 pm

Findacure is teaming up with charity Breaking Down Barriers to deliver an informative webinar on understanding genetics in the rare disease field on 21st of April at 11:00am GMT!

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July 2021

Virtual Event | NHS England and NHS Improvement: UK Framework Action Plan Discussion

20th July at 10:00 am - 12:00 pm

Join us on 20th July from 10am - 12pm as we sit down with NHS England and NHS Improvement for a two-hour discussion on the UK Rare Disease Framework Action Plan. This is your chance to share your thoughts, ideas and priorities with those implementing the UK Action Plan!

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Webinar | Understanding Health Economics: Preparing your patient group for HTA

28th July at 11:00 am - 12:30 pm

Health technology assessment (HTA) is the gateway to accessing medicines in much of Europe, but understanding the terminology, the process, and the role for patient groups can be hugely challenging. In this webinar we will dive in to the basics of health economics assessment, arming you with some of the knowledge and tools you need to understand the process. We will then explore the emerging role for patient groups in the HTA process - whether providing expert advice to bodies…

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September 2021

Webinar | Navigating Health Technology Assessments

8th September at 1:00 pm - 2:30 pm

Findacure is teaming up with Realise Advocacy to deliver an informative webinar on Health Technology Assessments on Wednesday 8th of September at 1 pm BSTHealth technology assessments are essential to accessing medicines however, understanding the process and knowing where patient groups can have the most impact can be a real challenge. Knowing this, Findacure has partnered with Realise Advocacy to provide practical support to patient groups to help them better prepare and maximise their impact in health technology assessments (HTA).…

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