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September 2019
Workshop: Building a rare disease patient registry
![[Image description: a man in a seated audience holds a microphone and is speaking to an unseen person]](https://www.findacure.org.uk/wp-content/uploads/2019/07/ArnabKGhosal_Findacure-26815-Web-300x200.png)
Findacure is delighted to announce its next training workshop, which will guide patient groups through developing a strategic approach to building a registry that is right for their organisation.
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