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September 2019

Workshop: Building a rare disease patient registry

17th September at 10:30 am - 4:30 pm
White & Case, 5 Old Broad Street
London, EC2N 1DW United Kingdom
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[Image description: a man in a seated audience holds a microphone and is speaking to an unseen person]

Findacure is delighted to announce its next training workshop, which will guide patient groups through developing a strategic approach to building a registry that is right for their organisation. 

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