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September 2019

Workshop: Building a rare disease patient registry

17th September, 2019 at 10:30 am - 4:30 pm
White & Case, 5 Old Broad Street
London, EC2N 1DW United Kingdom
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[Image description: a man in a seated audience holds a microphone and is speaking to an unseen person]

Findacure is delighted to announce its next training workshop, which will guide patient groups through developing a strategic approach to building a registry that is right for their organisation. 

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November 2019

Workshop: Diving into drug repurposing

5th November, 2019 at 10:30 am - 4:30 pm
White & Case, 5 Old Broad Street
London, EC2N 1DW United Kingdom
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[image description: a man sits within an audience. He is holding a microphone and speaking into it]

Findacure, in partnership with MCDS Therapy, is delighted to announce its next training workshop, which will introduce patient groups to drug repurposing and guide them through assessing their own readiness for a drug repurposing project.  What will be covered? The basics - what is drug repurposing and why is it relevant to rare diseases? The main routes for delivering repurposed drugs to patients Identifying repurposing opportunities for your rare condition The roles of different interest groups in the repurposing process…

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January 2020

Workshop: leading a rare patient group

22nd January at 10:30 am - 4:30 pm
RCPCH, Royal College of Paediatrics and Child Health, 5-11 Theobalds Rd
London, WC1X 8SH
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[image description: photo of two event attendees talking to one another]

Findacure is delighted to announce its next training workshop, which will provide a comprehensive introduction to the theories of leadership and guide attendees through developing personal and professional leadership skills

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May 2020

Online workshop: Setting yourself up for fundraising success

4th May - 6th May
[image description: a photo of three women sat around a table. They are engaged in conversation and two are laughing]

Findacure is delighted to announce its first online workshop, which will provide support and guidance to rare disease patient groups looking to enhance their skills in fundraising.

Taking place in interactive 90-minute sessions across three days, the workshop will delve into three key topics; finding fundraising opportunities, top tips for a good fundraising application, and seeking support from corporate organisations.

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