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November 2021
Masterclass | Public Speaking and Presenting for Patient Group Leaders
We are excited to announce our newest project for patient group leaders: the Public Speaking and Presenting Masterclass series!
Find out more »Online workshop | Getting involved in research and trial design
Join us from the 30th of November to the 2nd of December for our next workshop | Getting involved with clinical research and trial design!
Find out more »December 2021
Webinar | Maximising engagement with healthcare professionals
Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCP's in the most beneficial way. Most rare diseases are not concentrated in one area or country and do not affect one singular body system, which makes finding healthcare professionals (HCPs) or specialists who understand them a real challenge for patients and patient organisations. Yet, it is often a top strategic priority for patient organisations to find and engage with these…
Find out more »January 2022
A Rare Time to Relax
It's rare we make the time to relax - Join us for three Wellbeing Sessions in January 2022 with Robyn Silverton, Holistic Health Specialist
Find out more »A Rare Time to Relax
It's rare we make the time to relax - Join us for three Wellbeing Sessions in January 2022 with Robyn Silverton, Holistic Health Specialist
Find out more »