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October 2020

RareChat | Understanding SEO

22nd October, 2020 at 8:00 am - 5:00 pm
infographic for our RareChat on understanding SEO

Our next RareChat on Wednesday 28th October will be discussing your own experiences with search engine optimisation, or SEO. We hope to address some of your frequently asked questions so you can walk away with a better understanding of what SEO can do for you as a rare disease patient group!

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November 2020

The Virtual Rare Disease Showcase

17th November, 2020 - 19th November, 2020
Rare Disease Showcase

Findacure’s Rare Disease Showcase Series, now in its fifth year, is a celebration of innovative rare disease projects across the UK.

With the world transformed by a global pandemic, this year’s showcase is, naturally, a little different. Taking place entirely online, our 2020 event – The Virtual Rare Disease Showcase – will illustrate the impact that technological and digital advancements are having on the future of rare disease treatment and care.

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December 2020

RareChat | Virtual Events

9th December, 2020 at 11:00 am - 12:30 pm
[image description: infographic for RareChat | Virtual Events]

Just in - Our next RareChat | Virtual Events is happening on Wednesday, 9th December at 11am GMT! We will be discussing your own experiences attending, running and planning virtual events.

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January 2021

Online workshop | Representing your community: engaging with ethnic minority communities

12th January - 14th January
[image description: a photo of two women standing next to a banner stand which advertising the Breaking Down Barriers project]

Findacure is delighted to announce its next online workshop, which will guide patient groups through improving engagement with ethnic minority groups to better represent and serve their respective rare disease communities. 

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Webinar | Natural history studies for rare diseases: the importance of collecting real-world data from patients to enhance the development of therapies

20th January at 3:00 pm - 4:30 pm
Natural history studies for rare diseases: the importance of collectin real-world data from patients to enhance the development of therapies banner image

Findacure is teaming up with AI-company Healx, to deliver an informative webinar on natural history studies in rare diseases on 20th January at 3:00pm GMT!

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