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April 2019

The London Marathon

28th April at 8:00 am - 5:00 pm
[Image description: A man wearing sports clothes standing in a muddy river.]

On Sunday 28th April, Alan Blackham will take on a monumental challenge - running the 2019 Lonon Marathon on behalf of Findacure!  Alan's Story For many years I have been battling a rare condition called Thoracic Outlet Syndrome, which in its more severe stages causes a lack of blood flow to the arms. I can personally attest that this is severely painful and that these bouts make the sufferer’s arms so weak that they cannot be used. I battled with these…

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May 2019

Pint of Science: Researching the rare to understand and treat the common

21st May at 7:00 pm - 9:30 pm
The Panton Arms, 43 Panton Street
Cambridge, CB2 1HL United Kingdom
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[Image description: Image shows a graphic with a pint of beer, on top of which is a brain wearing glasses. Next to the pint is text which reads 'Pint of Science']

A rare disease affects less than 1 in 2000 so why dedicate your life to studying a disease affecting so few? Why not one of the big killers like cancer or malaria? Find out how rare disease research can provide valuable insights into common diseases, help us better understand the fundamentals of modern science and medicine, and lead to the development of life-saving drugs. Rare genetic premature ageing syndromes called progeria trigger the appearance of ageing signs in early childhood…

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Pint of Science: The genomic revolution – searching for a cure for the 1 in 17

22nd May at 7:00 pm - 9:30 pm
The Panton Arms, 43 Panton Street
Cambridge, CB2 1HL United Kingdom
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[Image description: Image shows a graphic with a pint of beer, on top of which is a brain wearing glasses. Next to the pint is text which reads 'Pint of Science']

There are 7000 rare diseases affecting 3.5 million in the UK alone. 75% affect children and include rare cancers, cystic fibrosis and Huntington’s disease. 80% of rare diseases are caused by a defect in the genetic blueprint, sometimes a single spelling mistake in the three billion letters that make up the human genome, yet can have devastating consequences. How is the genomic revolution helping? Big Data and DNA now go hand in hand. This is pivotal for exploring the link…

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