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December 2018

London Santa Run 2018

2nd December, 2018

Victoria Park, London E3 5TB + Google Map

[Image description: A photograph of hundreds of people dressed like Santa Clause and running.]

Grab a mince pie and take on this brilliantly silly challenge to raise money for Findacure! Join over 4,000 runners in the beautiful setting of Victoria Park, London, for a day of fantastic festive fun. Now in its 9th year, the Do it for Charity Santa Run is the largest in London and is the perfect winter challenge for the whole family to enjoy. Event details: £25 registration fee per runner 5k or 10k route - choose on the day!…

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January 2019

The everyday impact of rare diseases: supporting your patient community

17th January at 10:00 am - 4:00 pm

Hamilton House, Mabledon Place
London, WC1H 9AZ + Google Map

[Image description: Photograph of someone talking with their arms stretched as though emphasising how big something is.]

Findacure is delighted to announce its first training workshop of 2019, which will focus on how patient groups can help support their patient communities through the everyday impact of living with a rare condition. 10:00 Registration 10:30 Welcome 10:40 Contact: how we support families with rare conditions - Rachel Gibson, Rare Conditions Officer, Contact 11:25 Discussion session: how can patient organisations help their community access services 12:15 Lunch 13:15 Encouraging self-management in young people with haemophilia …