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May 2019

Pint of Science: Researching the rare to understand and treat the common

21st May at 7:00 pm - 9:30 pm
The Panton Arms, 43 Panton Street
Cambridge, CB2 1HL United Kingdom
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[Image description: Image shows a graphic with a pint of beer, on top of which is a brain wearing glasses. Next to the pint is text which reads 'Pint of Science']

A rare disease affects less than 1 in 2000 so why dedicate your life to studying a disease affecting so few? Why not one of the big killers like cancer or malaria? Find out how rare disease research can provide valuable insights into common diseases, help us better understand the fundamentals of modern science and medicine, and lead to the development of life-saving drugs. Rare genetic premature ageing syndromes called progeria trigger the appearance of ageing signs in early childhood…

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Pint of Science: The genomic revolution – searching for a cure for the 1 in 17

22nd May at 7:00 pm - 9:30 pm
The Panton Arms, 43 Panton Street
Cambridge, CB2 1HL United Kingdom
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[Image description: Image shows a graphic with a pint of beer, on top of which is a brain wearing glasses. Next to the pint is text which reads 'Pint of Science']

There are 7000 rare diseases affecting 3.5 million in the UK alone. 75% affect children and include rare cancers, cystic fibrosis and Huntington’s disease. 80% of rare diseases are caused by a defect in the genetic blueprint, sometimes a single spelling mistake in the three billion letters that make up the human genome, yet can have devastating consequences. How is the genomic revolution helping? Big Data and DNA now go hand in hand. This is pivotal for exploring the link…

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July 2019

Growing your rare disease patient group: Identifying patients and groups online

11th July at 10:00 am - 10:45 am
[Image description: A photograph of two people hugging at a Findacure workshop. They are hugging like they are good friends who haven’t seen each other in a while.]

Calling all rare disease patient groups! Are you hoping to grow your group’s patient community? Tune into our webinar to find out how you can identify and reach out to patients online. There are two main ways of growing your patient group’s community online: building an online presence (e.g. through a website and social media) to make it easier for patients and families to find you; and actively identifying and reaching out to patients. This webinar will cover the second…

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August 2019

The Cambridge Rare Disease Showcase

8th August at 6:45 pm - 9:00 pm
Espresso Library, 210 East Road
Cambridge, CB11BG
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[image description: two women engaged in conversations ]

Our Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. Join Findacure for the annual Cambridge Rare Disease Showcase – a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs.

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