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September 2018

London to Cambridge cycle ride

16th September
[Image description: Four fundraisers stood at the finish line of a cycle race wearing helmets and standing next to their bikes]

Grab your helmet and take on this brilliant cycling challenge to raise money for Findacure! Cycle 60 scenic miles from London to Cambridge on a fully supported and sign posted route as part of Team Findacure. Event details: £25 registration fee per rider Suitable for a range of abilities and ages Free mechanic service on the day and four refreshment stops en route Free refreshments for every rider and a medal at the finish line Great event for teams of…

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Social research – how to go about it?

19th September at 10:00 am - 4:00 pm
Kudos Health, 4 Cam Road
Stratford, London, E15 2SN
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[Image description: Infographic showing details of the "Social Research - how to go about it" workshop. The image reads: A #KudosHealthEvent. Our speakers will offer advice and expertise on social research, including best practive and how to avoid common pitfalls. Taking place on Wednesday 19th September in London. A Kudos Health Event in collaboration with Findacure.]

Kudos Health and Findacure invite you to join them at the second #KudosHealthDay to learn all about social research. Whether it be to assess the impact of a project, identify a community’s research priorities, or collect evidence on the burden of disease on patients and their families, social research can be very valuable to the work of rare disease patient organisations - but getting started can be a difficult process. Kudos Health is working in partnership with Findacure to deliver…

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October 2018

The Glasgow Rare Disease Showcase

10th October at 10:00 am - 5:00 pm
[Image description: A photograph of two people stood up talking at a Findacure conference. Both people are smiling as though they are laughing with each other.]

  October will see the Findacure team crossing borders to celebrate rare disease projects in Scotland! Our Glasgow Rare Disease Showcase will unite the rare disease community and provide an opportunity for patient groups, researchers, clinicians, and the life sciences industry to come together as equals and share their rare disease stories. 09:30 - Registration 10:00 - Welcome 10:10 - Introduction to Findacure Dr Rick Thompson   CEO, Findacure 10:30 - Spinal muscular atrophy: progress and challenges in drug development for a…

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November 2018

Transforming rare science into treatments workshop

19th November at 10:30 am - 5:00 pm
RCPCH, Royal College of Paediatrics and Child Health, 5-11 Theobalds Rd
London, WC1X 8SH
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[Image description: Infographic showing details of the "translating rare science into treatments" workshop. The image reads: A Findacure #RareWorkshop. A day-long translational research workshop helping patient groups and academics drive research forward to deliver the treatments that patients need. Taking place on Wednesday 19th November in London. A Findacure event in partnership with LifeArc.]

How can patient groups help to transform rare science into treatments and successfully navigate the "translational valley of death".  Findacure, in collaboration with LifeArc, is delighted to announce its next workshop on translational research. The workshop will address a number of important issues designed to help patient groups and their academic and clinical collaborators understand how to turn laboratory science into effective treatments for rare disease patients. 10:00   Registration 10:30   Welcome 10:40   Translating translation         - Catriona Crombie,…

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December 2018

London Santa Run 2018

2nd December
[Image description: A photograph of hundreds of people dressed like Santa Clause and running.]

Grab a mince pie and take on this brilliantly silly challenge to raise money for Findacure! Join over 4,000 runners in the beautiful setting of Victoria Park, London, for a day of fantastic festive fun. Now in its 9th year, the Do it for Charity Santa Run is the largest in London and is the perfect winter challenge for the whole family to enjoy. Event details: £25 registration fee per runner 5k or 10k route - choose on the day!…

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