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September 2019

Workshop: Building a rare disease patient registry

17th September, 2019 at 10:30 am - 4:30 pm
White & Case, 5 Old Broad Street
London, EC2N 1DW United Kingdom
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[Image description: a man in a seated audience holds a microphone and is speaking to an unseen person]

Findacure is delighted to announce its next training workshop, which will guide patient groups through developing a strategic approach to building a registry that is right for their organisation. 

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October 2019

The Manchester Rare Disease Showcase

8th October, 2019 at 10:00 am - 5:00 pm
Bridgewater Hall, Lower Mosley Street
Manchester, M2 3WS United Kingdom
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[image description: a woman stands laughing amongst a crowd of people]

Our Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. Join Findacure for The Manchester Rare Disease Showcase – a day long conference celebrating rare disease developments in Manchester and North West England.

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November 2019

Workshop: Diving into drug repurposing

5th November, 2019 at 10:30 am - 4:30 pm
White & Case, 5 Old Broad Street
London, EC2N 1DW United Kingdom
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[image description: a man sits within an audience. He is holding a microphone and speaking into it]

Findacure, in partnership with MCDS Therapy, is delighted to announce its next training workshop, which will introduce patient groups to drug repurposing and guide them through assessing their own readiness for a drug repurposing project.  What will be covered? The basics - what is drug repurposing and why is it relevant to rare diseases? The main routes for delivering repurposed drugs to patients Identifying repurposing opportunities for your rare condition The roles of different interest groups in the repurposing process…

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January 2020

Webinar: building an international patient registry

15th January at 3:00 pm - 4:30 pm
[Image description: Graphic advertising the international patient registries webinar]

Following on from our patient registries workshop, Findacure is excited to announce our latest webinar on building an international patient registry in collaboration with pulseinfroframe.

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Workshop: leading a rare patient group

22nd January at 10:30 am - 4:30 pm
RCPCH, Royal College of Paediatrics and Child Health, 5-11 Theobalds Rd
London, WC1X 8SH
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[image description: photo of two event attendees talking to one another]

Findacure is delighted to announce its next training workshop, which will provide a comprehensive introduction to the theories of leadership and guide attendees through developing personal and professional leadership skills

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