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July 2021

RareChat | Transitioning to adult care

21st July at 1:00 pm - 2:30 pm

During our next RareChat on Wednesday 21st July we will explore the rare disease patient experience of transition from childhood to adult care in the health system.

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Webinar | Understanding Health Economics: Preparing your patient group for HTA

28th July at 11:00 am - 12:30 pm

Health technology assessment (HTA) is the gateway to accessing medicines in much of Europe, but understanding the terminology, the process, and the role for patient groups can be hugely challenging. In this webinar we will dive in to the basics of health economics assessment, arming you with some of the knowledge and tools you need to understand the process. We will then explore the emerging role for patient groups in the HTA process - whether providing expert advice to bodies…

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August 2021

RareChat | Working with HCP’s

18th August at 1:00 pm - 2:30 pm

During our next RareChat on Wednesday the 18th August we will explore the theme of engaging with healthcare professionals and clinicians as rare disease advocates and patient group leaders.   We all know that the rare community flourishes best when collaboration is put at the heart of practice. This means collaborating across patient groups, industry, academia and with HCP’s. However, actually finding opportunities for collaboration with clinicians and moving forward with these can be a challenge that requires a great…

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September 2021

Webinar | Navigating Health Technology Assessments

8th September at 1:00 pm - 2:30 pm

Findacure is teaming up with Realise Advocacy to deliver an informative webinar on Health Technology Assessments on Wednesday 8th of September at 1 pm BSTHealth technology assessments are essential to accessing medicines however, understanding the process and knowing where patient groups can have the most impact can be a real challenge. Knowing this, Findacure has partnered with Realise Advocacy to provide practical support to patient groups to help them better prepare and maximise their impact in health technology assessments (HTA).…

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Community fundraising for rare disease patient groups: through COVID-19 and beyond

21st September at 11:00 am - 23rd September at 1:00 pm
Community Fundraising graphic

Findacure is delighted to announce its next online workshop, which will delve into the basics of community fundraising for rare diseases through COVID-19 and beyond. The workshop will take place over the course of three days, each day we will explore a different theme in a two-hour interactive session. We will delve into the basics of community fundraising, assess its benefits and look at the tools and platforms available to help you with your campaign. In addition, we will look…

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