Events Search and Views Navigation
August 2020
RareChat | Registries
![[image description: promo graphic for our next RareChat, which focuses on registries.]](https://www.findacure.org.uk/wp-content/uploads/2020/08/Rare-Chat-August-300x149.jpg)
With patient groups' unprecedented access to patients, you have a unique opportunity to build a dataset that can change the way researchers and clinicians think about, or even treat your condition. We have a lot to consider when it comes to the value of sharing this information.
Find out more »September 2020
Mentoring Programme | Creating ‘talking head’ videos on your smart phone: an introduction
![[image description: photo of a previous mentoring cohort smiling at the camera holding their graduation certificates]](https://www.findacure.org.uk/wp-content/uploads/2019/09/Group-peer-mentoring-certifcates-2017-300x133.jpg)
Is your patient group looking to explore the world of video marketing? Are you worried you lack the funds, technical expertise or equipment to do so?
Well then, look no further! On Tuesday 25th August and Tuesday 1st September, we'll be holding online training sessions for our patient group mentoring cohort focusing on how to create 'talking head' style videos using your own smart phone. Perfect for those on a budget!
Find out more »Mentoring Programme | Creating ‘talking head’ videos on your smart phone: an introduction
Is your patient group looking to explore the world of video marketing? Are you worried you lack the funds, technical expertise or equipment to do so?
Well then, look no further! On Tuesday 25th August and Tuesday 1st September, we'll be holding online training sessions for our patient group mentoring cohort focusing on how to create 'talking head' style videos using your own smart phone. Perfect for those on a budget!
Find out more »RareChat | Engaging young people
![[image description: promo graphic for RareChat | Engaging young people.]](https://www.findacure.org.uk/wp-content/uploads/2020/09/Rare-Chat-Young-people-300x150.png)
Join us on Wednesday, 16th September, at 10:30 am for our next RareChat: Engaging young people! Engaging with a younger audience may seem challenging, but we're here to tell you that it can lead to valuable new opportunities for your patient group.
Find out more »Online workshop | Successful collaborations: engaging the people that matter
![[image description: photo of a man sat at a table. He is speaking to two women who sit with their backs to the camera]](https://www.findacure.org.uk/wp-content/uploads/2020/08/findacure-120914-small-37-300x200.jpg)
Findacure is delighted to announce its next online workshop, which will provide support and guidance to patient groups looking to build meaningful connections within the rare disease community. Taking place in interactive 2-hour sessions across three days, the workshop will delve into forming relationships with three key stakeholder groups: industry, patient groups, and medical professionals. Attendees will gain the most benefit by attending all three days of the workshop, however you can also sign up for each session independently. As…
Find out more »