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November 2021

Masterclass | Public Speaking and Presenting for Patient Group Leaders

3rd November, 2021 at 11:00 am - 17th November, 2021 at 12:30 am
Masterclass, Public Speaking and Presenting

We are excited to announce our newest project for patient group leaders: the Public Speaking and Presenting Masterclass series!

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Online workshop | Getting involved in research and trial design

30th November, 2021 at 11:00 am - 2nd December, 2021 at 1:00 pm

Join us from the 30th of November to the 2nd of December for our next workshop | Getting involved with clinical research and trial design!

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December 2021

Webinar | Maximising engagement with healthcare professionals

14th December, 2021 at 11:00 am - 12:30 pm

Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCP's in the most beneficial way. Most rare diseases are not concentrated in one area or country and do not affect one singular body system, which makes finding healthcare professionals (HCPs) or specialists who understand them a real challenge for patients and patient organisations. Yet, it is often a top strategic priority for patient organisations to find and engage with these…

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January 2022

A Rare Time to Relax

5th January at 7:30 pm - 8:30 pm

It's rare we make the time to relax - Join us for three Wellbeing Sessions in January 2022 with Robyn Silverton, Holistic Health Specialist

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A Rare Time to Relax

12th January at 7:30 pm - 8:30 pm

It's rare we make the time to relax - Join us for three Wellbeing Sessions in January 2022 with Robyn Silverton, Holistic Health Specialist

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