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The first RareChat of 2021 is here! Join us on Wednesday, 27th January, from 2pm - 3:30pm to discuss inclusion and engagement within your community. Claim your free ticket now to share your struggles and insights with your fellow patient group leaders!Find out more »
With Rare Disease Day just 18 days away, we wanted our February RareChat to focus on raising awareness amongst the general public. Join us on Wednesday, 17th February to discuss the general public's perception of rare diseases, how to get the general public to care about rare and more!Find out more »
Patient groups work incredibly hard to build and support their rare disease families - but this should never be a one -way relationship.
To be at their best, patient groups need to have a strong, motivated community which is committed to and actively involved in the organisation's mission. But how can you ensure and encourage participation, engagement and retention in your patient group's services?Find out more »
Exclusive to members of our 2020-21 mentoring programme, we are running a virtual training session which will allow attendees to understand and be able to identify potential mental health issues. The training will provide practical tools and guidance for supporting colleagues and volunteers. The session will be run by an expert trainer from the mental health charity Mind.Find out more »
Findacure is pleased to announce its next online workshop, which will provide guidance and practical advice to patient groups seeking to better support the mental health of their respective rare communities.
Taking place in 90-minute interactive sessions across three days, the workshop will delve into how patient groups can best prepare themselves to meet the mental health needs of their community, how to support patients and families going through challenging circumstances, and showcase examples of mental health projects already taking place in the field.Find out more »