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Our next RareChat on Wednesday 28th October will be discussing your own experiences with search engine optimisation, or SEO. We hope to address some of your frequently asked questions so you can walk away with a better understanding of what SEO can do for you as a rare disease patient group!Find out more »
Findacure’s Rare Disease Showcase Series, now in its fifth year, is a celebration of innovative rare disease projects across the UK.
With the world transformed by a global pandemic, this year’s showcase is, naturally, a little different. Taking place entirely online, our 2020 event – The Virtual Rare Disease Showcase – will illustrate the impact that technological and digital advancements are having on the future of rare disease treatment and care.Find out more »
Just in - Our next RareChat | Virtual Events is happening on Wednesday, 9th December at 11am GMT! We will be discussing your own experiences attending, running and planning virtual events.Find out more »
Findacure is delighted to announce its next online workshop, which will guide patient groups through improving engagement with ethnic minority groups to better represent and serve their respective rare disease communities.Find out more »
Webinar | Natural history studies for rare diseases: the importance of collecting real-world data from patients to enhance the development of therapies
Findacure is teaming up with AI-company Healx, to deliver an informative webinar on natural history studies in rare diseases on 20th January at 3:00pm GMT!Find out more »