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March 2021

Online workshop | Supporting your community: mental health and wellbeing

23rd March - 25th March
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Findacure is pleased to announce its next online workshop, which will provide guidance and practical advice to patient groups seeking to better support the mental health of their respective rare communities.

Taking place in 90-minute interactive sessions across three days, the workshop will delve into how patient groups can best prepare themselves to meet the mental health needs of their community, how to support patients and families going through challenging circumstances, and showcase examples of mental health projects already taking place in the field. 

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April 2021

Webinar | Ensuring inclusive communications around genetics

21st April at 11:00 am - 12:30 pm

Findacure is teaming up with charity Breaking Down Barriers to deliver an informative webinar on understanding genetics in the rare disease field on 21st of April at 11:00am GMT!

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Mentoring Programme | Closing Celebration

27th April at 1:30 pm - 3:30 pm
[image description: Photo of two women hugging smiling for the camera holding signs]

This event is for participants on Findacure’s 2020-21 Patient Group Mentoring Programme only. Findacure would love to invite you to our virtual closing celebration for the 2020-21 Patient Group Mentoring Programme. This past year has presented a unique set of challenges for everyone and especially for those in the rare disease community. Whilst the last 12 months might not have been anything like we expected, we are so proud of the resilience and dedication show by our mentors and mentees…

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Rare Chat | Rare disease and employment

28th April at 10:00 am - 11:30 am

During our next RareChat on Wednesday the 28th of April 10 – 11:30am we will be discussing the effects of having a rare condition on life in the workplace.

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May 2021

RareChat | Patient group experiences of using data

26th May at 10:00 am - 11:30 am
RareChat | Patient group experiences of using data

SOLD OUT! During our next RareChat on Wednesday 26th of May at 10am, we will be discussing the benefits and complexities of data use within patient groups.Data is at the centre of what patient groups do; it helps them to better understand their communities, build projects and services, demonstrate impact and drive research. It can be used in so many different ways that often the topic itself can be overwhelming and confusing. Yet when properly utilised it can help patient…

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