News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

30 August, 2019 / Findacure News, Home Page

Saying goodbye to our Patient Group Development Manager, Libbie!

It is with great sadness that we announce Libbie, our Patient Group Development Manager, will be leaving the charity in late-September.
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15 August, 2019 / Findacure News, Home Page

We’re recruiting a Fundraising Manager!

Findacure is recruiting a Fundraising Manager to help us raise the crucial funds we need to run our patient empowerment programme. We're looking for someone who is proactive and has experience in fundraising to join our small, hardworking team based just a few minutes' walk from Cambridge train station.
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18 July, 2019 / Findacure News

Come to our workshop this September!

Findacure is delighted to announce its next patient group training workshop, ‘Building a rare disease patient registry’! We listened to your feedback from our survey about what you would like to see in our workshops and you overwhelmingly voted for registries.
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5 July, 2019

Misdiagnosis: Introducing KIF1A.org

A US-based patient-led organisation, KIF1A.org, is reaching abroad to find more affected patients. The organisation was started by parents dedicated to finding a cure for children living with KIF1A Associated Neurological Disorder (KAND), a rare progressive genetic disease.
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2 July, 2019 / Findacure News

Findacure receives £300k from National Lottery

Findacure is thrilled to let you all know that our new Empowerment Programme has been awarded a three-year grant of £336,820 from the National Lottery Community Fund.
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14 May, 2019 / Findacure News

Wonderful news for Findacure fundraising!

Findacure are pleased to announce that we have recently joined a new fundraising platform, alongside Virgin Money Giving, called Wonderful!
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8 May, 2019 / Findacure News

Findacure’s new patient engagement committee

It is an exciting time for Findacure as we induct our new patient engagement committee.
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3 May, 2019 / Findacure News

Take part in our summer skydiving spectacular!

Calling all daredevils and thrill seekers: Now is your chance to sign up for the adrenaline rush of a lifetime!
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2 May, 2019 / Findacure News

Weekend fundraisers raise £1283 for Findacure!

On behalf of the whole team at Findacure, we would like to say a huge thank you to Sing! Choir and Alan Blackham who took part in fundraising events last weekend.
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18 April, 2019 / Findacure News

Join us at this year’s Pint of Science!

We are delighted to be teaming up with Cambridge Rare Disease Network for this year's Pint of Science! Pint of Science is a worldwide science festival that aims to communicate scientific developments to the general public in an interesting, engaging and approaching way by bringing scientists right into their local pubs! 
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29 March, 2019 / Findacure News

Become a trustee and support the rare disease community

We are recruiting new voluntary trustees to help us in our growth as a charity.
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29 March, 2019 / Findacure News

We are hiring a new Fundraising Manager!

Findacure is looking to recruit a new Fundraising Manager to help us raise the crucial funds to support our patient empowerment programme.
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28 February, 2019 / Findacure News

Student Voice Essay Winners Published!

We are pleased to announce that the winners of the 2018 Student Voice essay competition have now been published!
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21 February, 2019 / Findacure News

Goodbye to Katie

It is with regret that we are announcing the departure of Katie Cliss from the Findacure team.
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31 January, 2019 / Findacure News

Announcing our 2018 Student Voice winners

Find out about the winning entries in the Student Voice 2018 essay competition.
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31 January, 2019

Become a Findacure advisor – join our Patient Engagement Committee!

We are delighted to announce applications for our Patient Engagement Committee are now open - this is your chance help shape Findacure's work in the future and transform the lives of rare disease patients.
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30 January, 2019 / Findacure News

Take our patient group training survey!

Have your say on our patient group training programmes. What do you want to see from our future workshops? How...
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16 January, 2019 / Findacure News

Programme announced for Drug Repurposing for Rare Diseases Conference

We are delighted to confirm the programme for our Drug Repurposing for Rare Diseases...
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15 January, 2019 / Findacure News

We are hiring a new Communications Officer!

Findacure is looking for an additional team member, as we seek to increase our impact on the rare disease community.
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22 November, 2018 / Findacure News

New workshop! The everyday impact of rare diseases: supporting your patient community

Findacure is delighted to announce its first training workshop of 2019, which will focus on how patient groups can help...
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12 November, 2018 / Findacure News

2019 Cambridge Half Marathon – Join Team Findacure!

Join team Findacure at the beautiful Cambridge Half Marathon on Sunday 3rd March 2019! We are thrilled to offer ten...
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31 October, 2018 / Findacure News

Programme announced for Transforming Rare Science into Treatments workshop

We are delighted to announce the full programme for our Transforming Rare Science into Treatments workshop
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17 October, 2018 / Findacure News

Announcing the Drug Repurposing for Rare Diseases Conference!

Findacure’s Drug Repurposing for Rare Diseases Conference is returning for its sixth consecutive year! Developing drugs for rare diseases is...
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1 October, 2018 / Findacure News

The Student Voice 2018 – Essay competition launched!

Will you #DareToThinkRare and answer one of our three essay questions about the rare disease experience?
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17 September, 2018 / Findacure News

Programme announced for The Glasgow Rare Disease Showcase!

The programme for our Glasgow Rare Disease Showcase has been released! Taking place on Wednesday 10th October, our showcase will...
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12 September, 2018 / Findacure News

New workshop! Transforming rare science into treatments.

We are delighted to announce our next workshop, on the topic of translational research. We'll be partnering up with medical...
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10 September, 2018 / Findacure News

London Santa Run 2018 – join Team Findacure!

Fancy a challenge? Join over 4,000 santa runners in the beautiful setting of Victoria Park, London, on Sunday 2nd December for a day of fantastic festive fun!
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31 August, 2018 / Findacure News

Support the Student Voice

Looking to raise awareness among medical professionals? Then Findacure and Medics 4 Rare Diseases have an opportunity for you.
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2 August, 2018 / Findacure News

Programme announced for The Cambridge Rare Disease Showcase

Findacure is pleased to announce the lightning talk programme for our Cambridge Rare Disease Showcase! The evening will feature talks...
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30 July, 2018 / Findacure News

New workshop! Social research – how to go about it?

Findacure are teaming up with Kudos Health Research to deliver the next #KudosHealthDay on social research! Whether it be to...
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22 July, 2018 / Rare Disease World

M4RD launches ‘red flags’ survey for patient groups

Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of...
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19 July, 2018 / Findacure News

The Glasgow Rare Disease Showcase

Join Findacure for The Glasgow Rare Disease Showcase and celebrate rare disease projects in Scotland! This October, Findacure will head...
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12 June, 2018 / Findacure News

The Cambridge Rare Disease Showcase

Findacure is delighted to announce the return of its annual Cambridge Rare Disease Showcase! Cambridge is a well-known hub of...
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2 March, 2018 / Rare Disease World

1 in 17 photography project

1 in 17 is an exciting new project, launched by Findacure’s go-to photographer Barbara Asboth, which focuses on the individuals...
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1 December, 2017 / Findacure News

Peer Mentoring Programme 2018

Are you looking to set up or grow an advocacy group for a rare disease? Or are you looking to...
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16 October, 2017 / Findacure News

Cambridge Half Marathon 2018

Fancy a challenge? Be one of the 9000 people to fill the streets of Cambridge on Sunday 4th March in the 2018 Cambridge...
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5 October, 2017 / Findacure News

Drug Repurposing for Rare Diseases Conference 2018

Findacure is pleased to announce our 2018 Drug Repurposing for Rare Diseases Conference! Taking place on Tuesday 27th February, at...
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2 October, 2017 / Findacure News

The Student Voice 2017

Do you want to be a published scientist? You can be, with the return of Findacure’s essay competition, The Student...
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18 July, 2017 / Findacure News

The Newcastle Rare Disease Showcase

Join Findacure for The Newcastle Rare Disease Showcase, a day-long event to celebrate and highlight rare disease projects taking place...
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18 July, 2017 / Findacure News

We’re hiring a new Fundraising Officer!

If you’re searching for a varied and rewarding role, with plenty of responsibility, we have the job for you! We...
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11 July, 2017 / Findacure News

The Cambridge Rare Disease Showcase

We are excited to announce The Cambridge Rare Disease Showcase! At Findacure, we believe that collaboration is key to making...
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8 June, 2017 / Findacure News

Join Findacure on Jeans for Genes Day

Half a million children in the UK are affected by a life-altering genetic disorder. Jeans for Genes Day is an...
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19 April, 2017 / Findacure News

Saying goodbye to our Executive Director, Flóra Raffai

It is with a mix of sadness and gratitude that we announce the departure of our Executive Director, Flóra Raffai,...
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24 March, 2017 / Findacure News

We’re hiring! Join our team as our new Projects Officer

If you’re searching for a varied and rewarding role, with plenty of responsibility, we have the job for you! We...
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17 March, 2017

The Cardiff Rare Disease Showcase

Findacure is pleased to announce The Cardiff Rare Disease Showcase! Given the barriers that rare disease patients often face in...
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3 March, 2017 / Findacure News

The Student Voice: Winners published!

To mark Rare Disease Day 2017 our collaborators at Orphanet Journal of Rare Diseases published our three winning entries to our student essay competition, ‘The...
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2 March, 2017 / Findacure News

Collaborating for cures: Announcing our partnership with Healx

We are delighted to announce the establishment of a close partnership with Healx to accelerate our drug repurposing for rare diseases project. Drug...
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17 February, 2017 / Findacure News

Rare Repurposing Open Call

The rare repurposing open call is now closed to new submissions. We will updating the community about its progress in...
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17 February, 2017 / Findacure News

Join our ‘Repurposing Open Call’ Thunderclap!

Rare Disease Day – Tuesday 28th February – will unite rare disease patients, carers, patient groups, researchers, academics and many...
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6 February, 2017 / Findacure News

Skydive for Findacure!

Hold onto your hats! After the great success of our 2016 Skydive, Findacure will once again see our bravest supporters...
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11 January, 2017 / Findacure News

Run the Royal Parks Half Marathon!

On Sunday 8th October, the streets of central London will be filled with people as they take on the 2017 Royal...
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