A US-based patient-led organisation, KIF1A.org, is reaching abroad to find more affected patients. The organisation was started by parents dedicated to finding a cure for children living with KIF1A Associated Neurological Disorder (KAND), a rare progressive genetic disease.

Findacure is thrilled to let you all know that our new Empowerment Programme has been awarded a three-year grant of £336,820 from the National Lottery Community Fund.

Findacure are pleased to announce that we have recently joined a new fundraising platform, alongside Virgin Money Giving, called Wonderful!

It is an exciting time for Findacure as we induct our new patient engagement committee.

Calling all daredevils and thrill seekers: Now is your chance to sign up for the adrenaline rush of a lifetime!

On behalf of the whole team at Findacure, we would like to say a huge thank you to Sing! Choir and Alan Blackham who took part in fundraising events last weekend.

We are delighted to be teaming up with Cambridge Rare Disease Network for this year's Pint of Science! Pint of Science is a worldwide science festival that aims to communicate scientific developments to the general public in an interesting, engaging and approaching way by bringing scientists right into their local pubs! 

We are recruiting new voluntary trustees to help us in our growth as a charity.

Findacure is looking to recruit a new Fundraising Manager to help us raise the crucial funds to support our patient empowerment programme.

We are pleased to announce that the winners of the 2018 Student Voice essay competition have now been published!

It is with regret that we are announcing the departure of Katie Cliss from the Findacure team.

Find out about the winning entries in the Student Voice 2018 essay competition.

We are delighted to announce applications for our Patient Engagement Committee are now open - this is your chance help shape Findacure's work in the future and transform the lives of rare disease patients.

Have your say on our patient group training programmes. What do you want to see from our future workshops? How...

We are delighted to confirm the programme for our Drug Repurposing for Rare Diseases...

Findacure is looking for an additional team member, as we seek to increase our impact on the rare disease community.

Findacure is delighted to announce its first training workshop of 2019, which will focus on how patient groups can help...

Join team Findacure at the beautiful Cambridge Half Marathon on Sunday 3rd March 2019! We are thrilled to offer ten...

We are delighted to announce the full programme for our Transforming Rare Science into Treatments workshop

Findacure’s Drug Repurposing for Rare Diseases Conference is returning for its sixth consecutive year! Developing drugs for rare diseases is...

Will you #DareToThinkRare and answer one of our three essay questions about the rare disease experience?

The programme for our Glasgow Rare Disease Showcase has been released! Taking place on Wednesday 10th October, our showcase will...

We are delighted to announce our next workshop, on the topic of translational research. We'll be partnering up with medical...

Fancy a challenge? Join over 4,000 santa runners in the beautiful setting of Victoria Park, London, on Sunday 2nd December for a day of fantastic festive fun!

Looking to raise awareness among medical professionals? Then Findacure and Medics 4 Rare Diseases have an opportunity for you.

Findacure is pleased to announce the lightning talk programme for our Cambridge Rare Disease Showcase! The evening will feature talks...

Findacure are teaming up with Kudos Health Research to deliver the next #KudosHealthDay on social research! Whether it be to...

Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of...

Join Findacure for The Glasgow Rare Disease Showcase and celebrate rare disease projects in Scotland! This October, Findacure will head...

Findacure is delighted to announce the return of its annual Cambridge Rare Disease Showcase! Cambridge is a well-known hub of...

1 in 17 is an exciting new project, launched by Findacure’s go-to photographer Barbara Asboth, which focuses on the individuals...

Are you looking to set up or grow an advocacy group for a rare disease? Or are you looking to...

Fancy a challenge? Be one of the 9000 people to fill the streets of Cambridge on Sunday 4th March in the 2018 Cambridge...

Findacure is pleased to announce our 2018 Drug Repurposing for Rare Diseases Conference! Taking place on Tuesday 27th February, at...

Do you want to be a published scientist? You can be, with the return of Findacure’s essay competition, The Student...

Join Findacure for The Newcastle Rare Disease Showcase, a day-long event to celebrate and highlight rare disease projects taking place...

If you’re searching for a varied and rewarding role, with plenty of responsibility, we have the job for you! We...

We are excited to announce The Cambridge Rare Disease Showcase! At Findacure, we believe that collaboration is key to making...

Half a million children in the UK are affected by a life-altering genetic disorder. Jeans for Genes Day is an...

It is with a mix of sadness and gratitude that we announce the departure of our Executive Director, Flóra Raffai,...

If you’re searching for a varied and rewarding role, with plenty of responsibility, we have the job for you! We...

Findacure is pleased to announce The Cardiff Rare Disease Showcase! Given the barriers that rare disease patients often face in...

To mark Rare Disease Day 2017 our collaborators at Orphanet Journal of Rare Diseases published our three winning entries to our student essay competition, ‘The...

We are delighted to announce the establishment of a close partnership with Healx to accelerate our drug repurposing for rare diseases project. Drug...

The rare repurposing open call is now closed to new submissions. We will updating the community about its progress in...

Rare Disease Day – Tuesday 28th February – will unite rare disease patients, carers, patient groups, researchers, academics and many...

Hold onto your hats! After the great success of our 2016 Skydive, Findacure will once again see our bravest supporters...