News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

30 October, 2020

We’ve been published again!

Our CEO, Dr. Richard Thompson, has done it again! Rick's been published alongside his co-author Tom Lynam, who is Head of Marketing at Arkivum, in pharmaphorum!
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infographic for our RareChat on understanding SEO
22 October, 2020 / Findacure News, Home Page, Rare Disease World

RareChat | Understanding SEO

Our next RareChat on Wednesday 28th October will be discussing your own experiences with search engine optimisation, or SEO. We hope to address some of your frequently asked questions so you can walk away with a better understanding of what SEO can do for you as a rare disease patient group!
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infographic of a keyboard with a publish button
15 October, 2020 / Findacure News, Rare Disease World

We’ve been published three times in two months!

Big things have been happening at Findacure in the past two months. In the last 45 days, our team has been published in three different publications on three different topics! View the three publications Findacure has been featured in and pick up a copy today.
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Sandy Ayoub and Anneliese Ng smiling talking to patient groups
5 October, 2020 / Findacure News, Rare Disease World

The 2020 Student Voice Prize is now OPEN!

The 2020 Student Voice Prize is now OPEN! We've launched a new website, branding and essay questions. Learn more about The Student Voice Prize and check out this year's essay questions. You have until 16th November at 9:00 am GMT to submit your essay!
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30 September, 2020 / Findacure News

RareChat | Managing your Network

Our next RareChat on Wednesday 7th October will be discussing your own experiences with managing your network.
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4 September, 2020 / Findacure News, Home Page, Rare Disease World

Our Rare Disease Showcase is going virtual for 2020!

Join us, industry, pharma, medical professionals, researchers and fellow patient groups in celebration of innovative rare disease projects across the UK for the first-ever Virtual Rare Disease Showcase on 17th - 19th November 2020!
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[image description: promo graphic for RareChat | Engaging young people.]
1 September, 2020 / Findacure News

RareChat | Engaging young people

Join us on Wednesday, 16th September, at 10:30 am for our next RareChat: Engaging young people! Engaging with a younger audience may seem challenging, but we're here to tell you that it can lead to valuable new opportunities for your patient group.
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#RareMinds: Youth Campaign graphic calling for stories from rare disease individuals, siblings and those who have a rare disease parent or parents
28 August, 2020 / Findacure News, Rare Disease World

Don’t Miss the Launch of our #RareMinds: Youth Campaign!

In support of Youth Mental Health Awareness Day (7th September), we're launching our #RareMinds: Youth Campaign to highlight the voices, experiences and challenges faced by teens and young adults in the rare disease community. Learn how you can get involved!
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The Student Voice Prize winners with Findacure and Medics4RareDiseases
28 August, 2020 / Findacure News, Rare Disease World

The Student Voice Prize Patient Pairing is Now Open!

Once again, we're offering patient groups the chance to partner with a student entering The Student Voice Prize. If you'd like to learn more and/or be potentially paired with a student, please fill out our Patient Participation Form!
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[image description: promo graphic for Findacure's "Successful collaborations: engaging the people that matter" online workshop.]
21 August, 2020 / Findacure News

Online workshop | Successful collaborations: engaging the people that matter

Join us on 22nd September - 24th September to gain the support and guidance you need to build meaningful connections with industry, medical professionals and patient groups and charities.
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