It's that time of year again! Mediaplanet and Health Awareness' Rare Diseases Campaign is back and our CEO, Dr. Rick Thompson, is featured amongst it for the third year in a row. Learn what Rick discussed in his article now!

The Student Voice Prize Patient Group Pairing Scheme gives medical students, nurses and biological sciences undergraduate and masters students the chance to be paired with a rare disease patient group to learn first-hand about their condition and patient experience.

This webinar will explore the ways to measure quality of life in rare diseases for the purpose of health technology assessment, and the ways that patient organisations can get involved in the process.

Recruiting a Rare Board is a free programme designed by Findacure and Getting on Board – a charity specialising in trustee recruitment. It aims to help you recruit new board members in a professional manner, ideally leaving you with a group of interesting, skilled, and diverse people applying to help you deliver your patient group’s mission. Applications open now, but hurry - the deadline is 19th September!

You may have seen the Cows about Cambridge and walked their moo-vellous art trail, but what you may not have known is that our Projects Coordinator, Philippa Norman, entered a competition to win one of their mini moos and WON! Learn more now.

We are delighted to announce our next online workshop "Community fundraising for rare disease patient groups: through COVID-19 and beyond!" Join us as we delve into the basics of community fundraising over three, jampacked days on 21st to 23rd September. Learn more!

Applications are now open for the 2021-2023 term of our Patient Group Engagement Committee. Become a Findacure advisor and help shape the future of our events and projects.

Findacure is delighted to announce an exciting new partnership with Realise Advocacy!