Our Drug Repurposing for Rare Diseases Conference 2021 is coming back on 15th - 16th June! Our conference will be run entirely online via the Swapcard platform. Registration is NOW OPEN, so hurry over to our website to be amongst the first to sign up and claim your ticket!
We're teaming up with Breaking Down Barriers to deliver an informative webinar on understanding genetics in the rare disease field on 21st of April at 11:00am GMT! See what will be discussed and claim your free ticket now.
The 2020 Student Voice Prize winning essays have been published! Read Catriona Chaplin's overall winning essay in the Orphanet Journal of Rare Diseases or view Caitlyn, Molly and Sanjana's runner-up essays on BioMed Central's blog. Congratulations again to The 2020 Student Voice Prize winners!
We're featured in Health Awareness and Mediaplanet's 2021 Rare Diseases campaign! Read our CEO's article, Rare disease patient groups provide hope to isolated communities, in full now and be sure to pick up a copy of the Guardian newspaper to read the entire campaign in print.
Findacure is pleased to announce its next online workshop, which will provide guidance and practical advice to patient groups seeking to better support the mental health of their respective rare communities. Register now to join us on 23rd - 25th March!
Join us on Wednesday, 10th March, to discuss getting your community to give back! Come share how you can ensure and encourage participation, engagement and retention amongst your rare disease patient group. Register now!
Complete our 10-15 minute Patient Group Training Survey for your chance to WIN £50, £30 or £20! Claim your prize as a voucher or donate the money to a charity of your choice. It's a win, win! Take our survey now.
Our next RareChat is here! Join us on Wednesday, 17th February, to discuss raising awareness with the general public. Come hear how your fellow patient group leaders are working to get the general public to care about rare. Register now!
After three months and many impressive submissions and patient group pairings, we finally have our four 2020 Student Voice Prize winners! Please say hello and congratulations to our 2020 overall winner and three 2020 runner-ups!
Join us on Wednesday, 27th January, from 2pm - 3:30pm to discuss inclusion and engagement within your community. Claim your free ticket now to share your struggles and insights with your fellow patient group leaders and come away with new ideas on how to make your group more inclusive!
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