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News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

25 November, 2021 / Findacure News

Our CEO is featured in the ‘Rare Diseases’ Special Report in The Times!

Pick up a copy of The Times and Sunday Times to read the 'Rare Diseases' Special Report by Raconteur! Our CEO Dr Richard Thompson wrote a piece on pg. 12 about improving the care pathway for rare disease patients and families. He discusses care coordination, transition and more. Read the report now!
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23 November, 2021 / Findacure News, Home Page

Get your FREE ticket to the International Rare Disease Showcase!

Tickets are now available for the International Rare Disease Showcase! Explore international collaborations that are driving rare disease forward. Come discover the impact and challenges of working in the rare space around the world. Whether you wish to attend a single session or three days of fun, claim your FREE ticket to The International Rare Disease Showcase today!
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18 November, 2021 / Home Page

December’s webinar is on maximising engagement with healthcare professionals

Learn how patient groups can engage with healthcare professionals to improve diagnosis, understanding and research for their rare condition. Register to attend the first of two webinars to explore engagement with healthcare professionals alongside us and Medics4RareDiseases!
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18 November, 2021 / Findacure News

How to donate to Findacure after Virgin Money Giving closes

As you know, Virgin Money Giving (VMG) is closing on 30 November 2021 at midnight. Once VMG closes, we'll be moving over to the Wonderful 100% fee free donation fundraising platform! If you don’t have the time to organise your own fundraising event but would like to donate to Findacure, we've provided easy ways to do so here!
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4 November, 2021 / Findacure News

We are hiring a Fundraising Officer to join our team!

Findacure is recruiting a Fundraising Officer to work closely alongside our team to raise the funds we need to deliver our expanding programme of events and projects.
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2 November, 2021 / Rare Disease World

Virgin Money Giving CLOSES at midnight on 30 November 2021

Virgin Money Giving (VMG) is closing on 30 November 2021 at midnight. The VMG team has put together a Q&A page to walk you through what happens before and after the site’s official closure. We've outlined the key information you need to know before the end of the month.
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20 October, 2021 / Findacure News

Our CEO has been published three times this Autumn!

Our CEO Dr Rick Thompson has been in high demand this Autumn! In the space of a few months, he has been published in PharmaTimes magazine, Rare Revolution magazine and Mediaplanet UK's Rare Diseases Campaign. See what Rick discussed in each article now!
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13 October, 2021 / Findacure News

OUT NOW – Smart People: Rick Thompson and Lucy McKay

Our CEO Dr Rick Thompson and Medics 4 Rare Diseases CEO Lucy McKay have delivered a thought-provoking article for PharmaTimes magazine on the UK Rare Diseases Framework and current rare disease landscape. Dive deep with two brilliant CEOs to explore the changes they want to see happen now!
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13 October, 2021 / Findacure News

Cambridge MP Daniel Zeichner presented the Prime Minister’s Points of Light Award to our co-founders, Dr Nick Sireau and Dr Anthony Hall!

The Prime Minister has named Dr Nick Sireau and Dr Anthony Hall, the founders of Findacure, Points of Light awardees for driving awareness, research and treatment into rare diseases! Daniel Zeichner MP for Cambridge presented the Points of Light Award to Dr Sireau and Dr Hall on Friday, 8 October, at the Findacure office on 66 Devonshire Road.
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Photo of the Patient Group Engagement Committee Engagement Committee
6 October, 2021 / Findacure News

Say hello to our new Patient Group Engagement Committee!

We are delighted to introduce you all to our new Patient Group Engagement Committee!  Our newly inducted committee members will be bringing their insights, expertise and lived experiences to the board to help us ensure we meet the ever-growing needs of our patient group community. 
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