News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

[image description: infographic for Findacure's next RareChat | Fostering inclusion and engagement within your community]
19 January, 2021 / Findacure News, Home Page

Our first RareChat of 2021 is here!

Join us on Wednesday, 27th January, from 2pm - 3:30pm to discuss inclusion and engagement within your community. Claim your free ticket now to share your struggles and insights with your fellow patient group leaders and come away with new ideas on how to make your group more inclusive!
Read More
What the new UK Rare Disease Framework means for you infographic
15 January, 2021 / Home Page, Rare Disease World

Find out what the new UK Rare Disease Framework means for you

If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you in a simple, easy-to-read blog. Learn what the UK Rare Disease Framework means for you and let us know your thoughts in the comments or by tagging us on social media!
Read More
Sylvie awake
14 January, 2021 / Findacure News

Our CEO, Dr. Rick Thompson, welcomes a new baby girl!

Our CEO, Dr. Richard Thompson, has just welcomed a new baby girl! We'd like to introduce you all to little miss Sylvie!
Read More
[image description: photo of a woman smiling]
14 January, 2021 / Findacure News, Rare Disease World

The new UK Rare Disease Framework is here!

If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you. Learn the new UK Rare Disease Framework's four key priorities and five underpinning themes now!
Read More
Natural history studies for rare diseases: the importance of collectin real-world data from patients to enhance the development of therapies banner image
4 January, 2021 / Findacure News

Our first webinar of 2021 is on natural history studies for rare diseases with Healx!

Findacure has partnered with AI-company Healx, to bring you an informative webinar on natural history studies in rare diseases. Join us on 20th January at 3:00pm GMT to learn how to overcome challenges when designing meaningful natural history studies and more!
Read More
[image description: a photo of two women standing next to a banner stand which advertising the Breaking Down Barriers project]
15 December, 2020 / Findacure News

Next Online workshop| Representing your community: engaging with ethnic minority communities

Findacure is delighted to announce its next online workshop, which will guide patient groups through improving engagement with ethnic minority groups to better represent and serve their respective rare disease communities.
Read More
Findacure team
1 December, 2020 / Findacure News

We are growing our team!

Findacure is recruiting a Projects Administrator to help us deliver our expanding programme of events and projects. Apply by the 15th December for your chance to join our team!
Read More
[image description: infographic for RareChat | Virtual Events]
27 November, 2020 / Findacure News

New RareChat announced!

Just in - Our next RareChat | Virtual Events is happening on Wednesday, 9th December at 11am GMT! We will be discussing your own experiences attending, running and planning virtual events.
Read More
30 October, 2020 / Findacure News

We’ve been published again!

Our CEO, Dr. Richard Thompson, has done it again! Rick's been published alongside his co-author Tom Lynam, who is Head of Marketing at Arkivum, in pharmaphorum!
Read More
infographic for our RareChat on understanding SEO
22 October, 2020 / Findacure News, Rare Disease World

RareChat | Understanding SEO

Our next RareChat on Wednesday 28th October will be discussing your own experiences with search engine optimisation, or SEO. We hope to address some of your frequently asked questions so you can walk away with a better understanding of what SEO can do for you as a rare disease patient group!
Read More
1 2 3 11