News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

29 May, 2020 / Findacure News

Webinar: The National Lottery funding during Covid-19

Findacure know that many rare disease organisations are performing vital functions to support their communities throughout the pandemic, and could be eligible for funding from the National Lottery. We hope this webinar and subsequent discussion will encourage rare disease patient groups to apply for the support they need.
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7 May, 2020 / Findacure News

Community fundraising during Covid-19

We have compiled these ideas to help you raise funds through your community, even during the situation with Covid-19.
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6 May, 2020 / Findacure News, Home Page

We’re recruiting!

Findacure is recruiting a Marketing and Engagement Manager to help us raise raise awareness about the organisation and our projects.
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5 May, 2020 / Findacure News

RareChat – Community Fundraising and Lockdown

RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.
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28 April, 2020 / Findacure News, Home Page

Covid-19 Emergency funding document

At Findacure we are aware of the impact that Covid-19 has had on small charities and rare disease patient organisations. We have compiled this guidance to help your organisation to find funding in these difficult circumstances by utilising the emergency funding resources that have become available.
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24 April, 2020 / Findacure News

RareChat – Rare Diseases and Mental Health

RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.
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22 April, 2020 / Findacure News

Join our online workshop: Setting yourself up for fundraising success

Findacure is delighted to announce its first online workshop, which will provide support and guidance to rare disease patient groups looking to enhance their skills in fundraising. Taking place in interactive 90-minute sessions across three days...
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21 April, 2020 / Findacure News

Leading a rare patient group e-learning guide

Following our workshop in January, the latest guide on our e-learning portal centres on 'leading a rare patient group.' The guide covers the skills needed for good leadership and how these apply to patient organisation leadership.
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17 April, 2020 / Findacure News

Recruiting and managing trustees

Our webinar, taking place at 3 pm on Wednesday 22nd April, will help rare disease patient groups to establish efficient trustee boards that set their organisation up for success.
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31 March, 2020 / Findacure News

Evaluating the potential of drug repurposing for rare diseases and Covid-19

At this time of international crisis, a large number of companies and researchers are turning to drug repurposing as a potential solution – but what is repurposing and why is it such an attractive route for drug development at this time?
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