News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

[image description: photo of a young girl smiling holding a sign that says why she supports drug repurposing]
31 March, 2021 / Findacure News, Home Page

Drug Repurposing for Rare Diseases Conference 2021 returns!

Our Drug Repurposing for Rare Diseases Conference 2021 is coming back on 15th - 16th June! Our conference will be run entirely online via the Swapcard platform. Registration is NOW OPEN, so hurry over to our website to be amongst the first to sign up and claim your ticket!
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[image description: infographic for Findacure's Ensuring inclusive communications around genetics webinar that shows three logos at the top and a computer on the right hand side]
17 March, 2021 / Findacure News, Home Page

April’s webinar has been announced!

We're teaming up with Breaking Down Barriers to deliver an informative webinar on understanding genetics in the rare disease field on 21st of April at 11:00am GMT! See what will be discussed and claim your free ticket now.
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[image description: Infographic of the four 2020 Student Voice Prize winners' headshots in a circle surrounded by medical stickers and the SVP logo]
4 March, 2021 / Findacure News, Rare Disease World

The 2020 Student Voice Prize winning essays have been published!

The 2020 Student Voice Prize winning essays have been published! Read Catriona Chaplin's overall winning essay in the Orphanet Journal of Rare Diseases or view Caitlyn, Molly and Sanjana's runner-up essays on BioMed Central's blog. Congratulations again to The 2020 Student Voice Prize winners!
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Image description: infographic of a zoom room full of people smiling for an article on the importance of patient groups
2 March, 2021 / Findacure News, Rare Disease World

We’re featured in Health Awareness and Mediaplanet’s 2021 Rare Diseases campaign!

We're featured in Health Awareness and Mediaplanet's 2021 Rare Diseases campaign! Read our CEO's article, Rare disease patient groups provide hope to isolated communities, in full now and be sure to pick up a copy of the Guardian newspaper to read the entire campaign in print.
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[image description: photo of two women sitting next to each other engaged in conversation at a table]
24 February, 2021 / Findacure News

Register to attend our online mental health and wellbeing workshop

Findacure is pleased to announce its next online workshop, which will provide guidance and practical advice to patient groups seeking to better support the mental health of their respective rare communities. Register now to join us on 23rd - 25th March!
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[image description: graphic advertising rarechat. It shows a number of people in a virtual zoom room]
24 February, 2021 / Findacure News

New RareChat: Getting your community to give back

Join us on Wednesday, 10th March, to discuss getting your community to give back! Come share how you can ensure and encourage participation, engagement and retention amongst your rare disease patient group. Register now!
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Patient Group Training Survey infographic
17 February, 2021 / Findacure News

Take our Patient Group Training Survey & Win £50!

Complete our 10-15 minute Patient Group Training Survey for your chance to WIN £50, £30 or £20! Claim your prize as a voucher or donate the money to a charity of your choice. It's a win, win! Take our survey now.
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Infographic for RareChat | Raising awareness with the general public
10 February, 2021 / Findacure News

February’s RareChat has been announced!

Our next RareChat is here! Join us on Wednesday, 17th February, to discuss raising awareness with the general public. Come hear how your fellow patient group leaders are working to get the general public to care about rare. Register now!
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[image description: infographic saying "The Winner is" with the Student Voice Prize logo on the envelope]
2 February, 2021 / Findacure News

The 2020 Student Voice Prize winners are announced!

After three months and many impressive submissions and patient group pairings, we finally have our four 2020 Student Voice Prize winners! Please say hello and congratulations to our 2020 overall winner and three 2020 runner-ups!
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[image description: infographic for Findacure's next RareChat | Fostering inclusion and engagement within your community]
19 January, 2021 / Findacure News

Our first RareChat of 2021 is here!

Join us on Wednesday, 27th January, from 2pm - 3:30pm to discuss inclusion and engagement within your community. Claim your free ticket now to share your struggles and insights with your fellow patient group leaders and come away with new ideas on how to make your group more inclusive!
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