Join us on Wednesday the 23rd June as we discuss Community fundraising through COVID-19 and beyond. Register to share how you see community fundraising continuing and evolving in the immediate and post COVID-19 era and more. Sign up now!
Looking to build or develop your patient group? Searching for opportunities to utilise your skills to benefit others? Sign up today to be a mentee or a mentor on the sixth round of our Patient Group Mentoring Programme! Applications close Sunday 4th July.
Our next RareChat will focus on patient group experiences of using data! Join us on Wednesday 26th May at 10am to discuss the benefits and complexities of data use within patient groups. Claim your FREE ticket now!
Genomics England is ready to begin the process of looking for ‘Additional Findings’ for participants of the 100,000 Genomes Project who opted in. Check and change the choice you made when consenting about opting into ‘Additional Findings’ by Monday, 19th April now!
Our Drug Repurposing for Rare Diseases Conference 2021 is coming back on 15th - 16th June! Our conference will be run entirely online via the Swapcard platform. Registration is NOW OPEN, so hurry over to our website to be amongst the first to sign up and claim your ticket!
We're teaming up with Breaking Down Barriers to deliver an informative webinar on understanding genetics in the rare disease field on 21st of April at 11:00am GMT! See what will be discussed and claim your free ticket now.
The 2020 Student Voice Prize winning essays have been published! Read Catriona Chaplin's overall winning essay in the Orphanet Journal of Rare Diseases or view Caitlyn, Molly and Sanjana's runner-up essays on BioMed Central's blog. Congratulations again to The 2020 Student Voice Prize winners!
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