News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

4 September, 2020 / Findacure News, Home Page, Rare Disease World

Our Rare Disease Showcase is going virtual for 2020!

Join us, industry, pharma, medical professionals, researchers and fellow patient groups in celebration of innovative rare disease projects across the UK for the first-ever Virtual Rare Disease Showcase on 17th - 19th November 2020!
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[image description: promo graphic for RareChat | Engaging young people.]
1 September, 2020 / Findacure News

RareChat | Engaging young people

Join us on Wednesday, 16th September, at 10:30 am for our next RareChat: Engaging young people! Engaging with a younger audience may seem challenging, but we're here to tell you that it can lead to valuable new opportunities for your patient group.
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#RareMinds: Youth Campaign graphic calling for stories from rare disease individuals, siblings and those who have a rare disease parent or parents
28 August, 2020 / Findacure News, Rare Disease World

Don’t Miss the Launch of our #RareMinds: Youth Campaign!

In support of Youth Mental Health Awareness Day (7th September), we're launching our #RareMinds: Youth Campaign to highlight the voices, experiences and challenges faced by teens and young adults in the rare disease community. Learn how you can get involved!
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The Student Voice Prize winners with Findacure and Medics4RareDiseases
28 August, 2020 / Findacure News, Home Page, Rare Disease World

The Student Voice Prize Patient Pairing is Now Open!

Once again, we're offering patient groups the chance to partner with a student entering The Student Voice Prize. If you'd like to learn more and/or be potentially paired with a student, please fill out our Patient Participation Form!
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[image description: promo graphic for Findacure's "Successful collaborations: engaging the people that matter" online workshop.]
21 August, 2020 / Findacure News

Online workshop | Successful collaborations: engaging the people that matter

Join us on 22nd September - 24th September to gain the support and guidance you need to build meaningful connections with industry, medical professionals and patient groups and charities.
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[image description: promo graphic for our next RareChat, which focuses on registries.]
20 August, 2020 / Findacure News

RareChat | Registries

Join us on Wednesday, 26th August at 10:30am as we discuss your experience with registries and registry development. This is your chance to connect with other patient group leaders and advocates in the rare disease community!
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[image description: promo graphic for the "Recruiting and managing trustees" guide.]
5 August, 2020 / Findacure News

Recruiting and managing trustees guide now available!

Our latest guide helps you to re-evaluate your board so that you can take the steps needed to make it better, more diverse and well managed. View guide!
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[image description: promo photo highlighting our next RareChat on 31st July entitled, 'Life post-lockdown: unlocking the rare disease community.]
23 July, 2020 / Findacure News

RareChat | Life post-lockdown: unlocking the rare disease community

Join our next RareChat, 'Life post-lockdown: unlocking the rare disease community', on Friday, 31st July from 13:30 - 15:00 to discuss what a post-lockdown world looks like for you as a patient group.
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Building your patient group data to drive research webinar graphic
17 July, 2020 / Findacure News

Webinar: Building your patient group data to drive research

Join us on Wednesday, 29 July, from 15:00 to 16:30, as we collaborate with Aparito and Pulse Infoframe to bring you our Building your patient group data to drive research webinar!
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[image description: headshot photo of Blayne Baker]
10 July, 2020 / Findacure News

We have a new Marketing & Engagement Manager!

Big things are happening at Findacure this week, as we just welcomed our new Marketing & Engagement Manager, Blayne!
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