News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

24 April, 2020 / Findacure News

RareChat – Rare Diseases and Mental Health

RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.
Read More
22 April, 2020 / Findacure News

Join our online workshop: Setting yourself up for fundraising success

Findacure is delighted to announce its first online workshop, which will provide support and guidance to rare disease patient groups looking to enhance their skills in fundraising. Taking place in interactive 90-minute sessions across three days...
Read More
21 April, 2020 / Findacure News

Leading a rare patient group e-learning guide

Following our workshop in January, the latest guide on our e-learning portal centres on 'leading a rare patient group.' The guide covers the skills needed for good leadership and how these apply to patient organisation leadership.
Read More
17 April, 2020 / Findacure News

Recruiting and managing trustees

Our webinar, taking place at 3 pm on Wednesday 22nd April, will help rare disease patient groups to establish efficient trustee boards that set their organisation up for success.
Read More
31 March, 2020 / Findacure News

Evaluating the potential of drug repurposing for rare diseases and Covid-19

At this time of international crisis, a large number of companies and researchers are turning to drug repurposing as a potential solution – but what is repurposing and why is it such an attractive route for drug development at this time?
Read More
17 March, 2020 / Findacure News

Findacure Office Closed – but work continues!

In light of the UK government's advice regarding the Covid-19 outbreak, announced on the evening of 16th March, the Findacure office has now closed and the team are all working from home.
Read More
10 March, 2020 / Findacure News

Findacure’s response to Coronavirus

With the recent developments regarding Covid-19 (Coronavirus), we have been considering Findacure's response to the outbreak.
Read More
2 March, 2020 / Findacure News

Student Voice Prize Winners Published

The winners of the 2019 Student Voice Prize have now been published in celebration of Rare Disease Day 2020. You can find links to all of the pieces here.
Read More
11 February, 2020 / Findacure News

Developing medical guidelines portal guide release

Announcing the release of a new learning guide on our online portal. The 'Developing medical guidelines' guide focuses on assessing your patient groups suitability for medical guidelines and walks through the different steps of developing medical guidelines alongside NICE guidance. Check it out if you are interested in understanding what medical guidelines do, how they can benefit your patient population and how you can create them.
Read More
31 January, 2020 / Findacure News

Applications are open for our patient group mentoring programme!

Are you looking to set up or grow an advocacy group for a rare disease? Or are you looking to share your professional experience and skills to benefit others? Well then, we have some great news for you! We are now recruiting mentees and mentors for the fifth round of our patient group mentoring programme, due to kick off in March 2020.  
Read More