It's been a month full of change for our Findacure team! Firstly, we are delighted to announce Mary Rose Roberts, previously our Events Manager, is now Findacure’s Head of Operations. Mary Rose now leads on the strategy and development of our Empowerment programme, as well as continuing production of our annual Drug Repurposing Conference and the Rare Disease Showcase Series.

Findacure is delighted to announce its next training workshop, which will provide a comprehensive introduction to the theories of leadership and guide attendees through developing personal and professional leadership skills

We are delighted to have secured five spaces in the 2020 Cambridge Half Marathon.

On 4th October 2019, the Student Voice Prize 2019 officially launched! In partnership with Medics4RareDiseases, this competition, now in its sixth year, offers a fantastic opportunity for medical students to develop an understanding of rare diseases.

It is with great sadness that we announce Libbie, our Patient Group Development Manager, will be leaving the charity in late-September.

Findacure is recruiting a Fundraising Manager to help us raise the crucial funds we need to run our patient empowerment programme. We're looking for someone who is proactive and has experience in fundraising to join our small, hardworking team based just a few minutes' walk from Cambridge train station.

Findacure is delighted to announce its next patient group training workshop, ‘Building a rare disease patient registry’! We listened to your feedback from our survey about what you would like to see in our workshops and you overwhelmingly voted for registries.

A US-based patient-led organisation, KIF1A.org, is reaching abroad to find more affected patients. The organisation was started by parents dedicated to finding a cure for children living with KIF1A Associated Neurological Disorder (KAND), a rare progressive genetic disease.