Findacure and Metabolic Support UK are excited to announce their first joint webinar - What does early access actually mean? - supported by Bionical Emas.

Our latest guide helps your organisation to keep your communities connected and engaged through effective virtual events.

Findacure is delighted to announce its next online workshop, which will provide support and guidance to rare disease patient groups looking to expand their knowledge on using social media. Taking place in interactive 2-hour sessions across three days, the workshop will delve into three key topics: the ABC’s of using social media; communicating for impact; and top tips for running a social media campaign.

Findacure know that many rare disease organisations are performing vital functions to support their communities throughout the pandemic, and could be eligible for funding from the National Lottery. We hope this webinar and subsequent discussion will encourage rare disease patient groups to apply for the support they need.

We have compiled these ideas to help you raise funds through your community, even during the situation with Covid-19.

Findacure is recruiting a Marketing and Engagement Manager to help us raise raise awareness about the organisation and our projects.

RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.

At Findacure we are aware of the impact that Covid-19 has had on small charities and rare disease patient organisations. We have compiled this guidance to help your organisation to find funding in these difficult circumstances by utilising the emergency funding resources that have become available.