News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

[image description: a photo of two women standing next to a banner stand which advertising the Breaking Down Barriers project]
15 December, 2020 / Findacure News

Next Online workshop| Representing your community: engaging with ethnic minority communities

Findacure is delighted to announce its next online workshop, which will guide patient groups through improving engagement with ethnic minority groups to better represent and serve their respective rare disease communities.
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Findacure team
1 December, 2020 / Findacure News

We are growing our team!

Findacure is recruiting a Projects Administrator to help us deliver our expanding programme of events and projects. Apply by the 15th December for your chance to join our team!
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[image description: infographic for RareChat | Virtual Events]
27 November, 2020 / Findacure News

New RareChat announced!

Just in - Our next RareChat | Virtual Events is happening on Wednesday, 9th December at 11am GMT! We will be discussing your own experiences attending, running and planning virtual events.
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30 October, 2020 / Findacure News

We’ve been published again!

Our CEO, Dr. Richard Thompson, has done it again! Rick's been published alongside his co-author Tom Lynam, who is Head of Marketing at Arkivum, in pharmaphorum!
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infographic for our RareChat on understanding SEO
22 October, 2020 / Findacure News, Rare Disease World

RareChat | Understanding SEO

Our next RareChat on Wednesday 28th October will be discussing your own experiences with search engine optimisation, or SEO. We hope to address some of your frequently asked questions so you can walk away with a better understanding of what SEO can do for you as a rare disease patient group!
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infographic of a keyboard with a publish button
15 October, 2020 / Findacure News, Rare Disease World

We’ve been published three times in two months!

Big things have been happening at Findacure in the past two months. In the last 45 days, our team has been published in three different publications on three different topics! View the three publications Findacure has been featured in and pick up a copy today.
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Sandy Ayoub and Anneliese Ng smiling talking to patient groups
5 October, 2020 / Findacure News, Rare Disease World

The 2020 Student Voice Prize is now OPEN!

The 2020 Student Voice Prize is now OPEN! We've launched a new website, branding and essay questions. Learn more about The Student Voice Prize and check out this year's essay questions. You have until 16th November at 9:00 am GMT to submit your essay!
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30 September, 2020 / Findacure News

RareChat | Managing your Network

Our next RareChat on Wednesday 7th October will be discussing your own experiences with managing your network.
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4 September, 2020 / Findacure News, Rare Disease World

Our Rare Disease Showcase is going virtual for 2020!

Join us, industry, pharma, medical professionals, researchers and fellow patient groups in celebration of innovative rare disease projects across the UK for the first-ever Virtual Rare Disease Showcase on 17th - 19th November 2020!
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[image description: promo graphic for RareChat | Engaging young people.]
1 September, 2020 / Findacure News

RareChat | Engaging young people

Join us on Wednesday, 16th September, at 10:30 am for our next RareChat: Engaging young people! Engaging with a younger audience may seem challenging, but we're here to tell you that it can lead to valuable new opportunities for your patient group.
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