News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

19 December, 2019 / Findacure News

Announcing our next webinar, international patient registries in January 2020

Following on from our patient registries workshop, Findacure is excited to announce our latest webinar on building an international patient registry in collaboration with pulse infoframe.
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29 November, 2019 / Findacure News

Staff changes at Findacure

It's been a month full of change for our Findacure team! Firstly, we are delighted to announce Mary Rose Roberts, previously our Events Manager, is now Findacure’s Head of Operations. Mary Rose now leads on the strategy and development of our Empowerment programme, as well as continuing production of our annual Drug Repurposing Conference and the Rare Disease Showcase Series.
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15 November, 2019 / Findacure News

Build your leadership skills at our first workshop of 2020

Findacure is delighted to announce its next training workshop, which will provide a comprehensive introduction to the theories of leadership and guide attendees through developing personal and professional leadership skills
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15 October, 2019 / Findacure News

Five spaces available in the Cambridge Half Marathon 2020

We are delighted to have secured five spaces in the 2020 Cambridge Half Marathon.
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4 October, 2019 / Findacure News

Student Voice Prize 2019 launches!

On 4th October 2019, the Student Voice Prize 2019 officially launched! In partnership with Medics4RareDiseases, this competition, now in its sixth year, offers a fantastic opportunity for medical students to develop an understanding of rare diseases.
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30 August, 2019 / Findacure News

Saying goodbye to our Patient Group Development Manager, Libbie!

It is with great sadness that we announce Libbie, our Patient Group Development Manager, will be leaving the charity in late-September.
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15 August, 2019 / Findacure News

We’re recruiting a Fundraising Manager!

Findacure is recruiting a Fundraising Manager to help us raise the crucial funds we need to run our patient empowerment programme. We're looking for someone who is proactive and has experience in fundraising to join our small, hardworking team based just a few minutes' walk from Cambridge train station.
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18 July, 2019 / Findacure News

Come to our workshop this September!

Findacure is delighted to announce its next patient group training workshop, ‘Building a rare disease patient registry’! We listened to your feedback from our survey about what you would like to see in our workshops and you overwhelmingly voted for registries.
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5 July, 2019

Misdiagnosis: Introducing KIF1A.org

A US-based patient-led organisation, KIF1A.org, is reaching abroad to find more affected patients. The organisation was started by parents dedicated to finding a cure for children living with KIF1A Associated Neurological Disorder (KAND), a rare progressive genetic disease.
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2 July, 2019 / Findacure News

Findacure receives £300k from National Lottery

Findacure is thrilled to let you all know that our new Empowerment Programme has been awarded a three-year grant of £336,820 from the National Lottery Community Fund.
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