News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

[image description: promo graphic for our next RareChat, which focuses on registries.]
20 August, 2020 / Findacure News

RareChat | Registries

Join us on Wednesday, 26th August at 10:30am as we discuss your experience with registries and registry development. This is your chance to connect with other patient group leaders and advocates in the rare disease community!
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[image description: promo graphic for the "Recruiting and managing trustees" guide.]
5 August, 2020 / Findacure News

Recruiting and managing trustees guide now available!

Our latest guide helps you to re-evaluate your board so that you can take the steps needed to make it better, more diverse and well managed. View guide!
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[image description: promo photo highlighting our next RareChat on 31st July entitled, 'Life post-lockdown: unlocking the rare disease community.]
23 July, 2020 / Findacure News

RareChat | Life post-lockdown: unlocking the rare disease community

Join our next RareChat, 'Life post-lockdown: unlocking the rare disease community', on Friday, 31st July from 13:30 - 15:00 to discuss what a post-lockdown world looks like for you as a patient group.
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Building your patient group data to drive research webinar graphic
17 July, 2020 / Findacure News

Webinar: Building your patient group data to drive research

Join us on Wednesday, 29 July, from 15:00 to 16:30, as we collaborate with Aparito and Pulse Infoframe to bring you our Building your patient group data to drive research webinar!
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[image description: headshot photo of Blayne Baker]
10 July, 2020 / Findacure News

We have a new Marketing & Engagement Manager!

Big things are happening at Findacure this week, as we just welcomed our new Marketing & Engagement Manager, Blayne!
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29 June, 2020 / Findacure News

Rarechat | Engaging on social media during lockdown

Our next RareChat on Wednesday 8th July will be discussing how patient groups utilise social media during lockdown.
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22 June, 2020 / Findacure News

Webinar: What does Early Access actually mean?

Findacure and Metabolic Support UK are excited to announce their first joint webinar - What does early access actually mean? - supported by Bionical Emas.
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9 June, 2020 / Findacure News

New e-learning guide on running virtual events

Our latest guide helps your organisation to keep your communities connected and engaged through effective virtual events.
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[image description: photo showing a man sitting down at a workshop. He has a smile on his face and is looking at something off camera]
2 June, 2020 / Findacure News

Join our next workshop on social media

Findacure is delighted to announce its next online workshop, which will provide support and guidance to rare disease patient groups looking to expand their knowledge on using social media. Taking place in interactive 2-hour sessions across three days, the workshop will delve into three key topics: the ABC’s of using social media; communicating for impact; and top tips for running a social media campaign.
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[Image description: Webinar promo]
29 May, 2020 / Findacure News

Webinar: The National Lottery funding during Covid-19

Findacure know that many rare disease organisations are performing vital functions to support their communities throughout the pandemic, and could be eligible for funding from the National Lottery. We hope this webinar and subsequent discussion will encourage rare disease patient groups to apply for the support they need.
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