Our next RareChat is here! Join us on Wednesday, 17th February, to discuss raising awareness with the general public. Come hear how your fellow patient group leaders are working to get the general public to care about rare. Register now!
After three months and many impressive submissions and patient group pairings, we finally have our four 2020 Student Voice Prize winners! Please say hello and congratulations to our 2020 overall winner and three 2020 runner-ups!
Join us on Wednesday, 27th January, from 2pm - 3:30pm to discuss inclusion and engagement within your community. Claim your free ticket now to share your struggles and insights with your fellow patient group leaders and come away with new ideas on how to make your group more inclusive!
If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you in a simple, easy-to-read blog. Learn what the UK Rare Disease Framework means for you and let us know your thoughts in the comments or by tagging us on social media!
If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you. Learn the new UK Rare Disease Framework's four key priorities and five underpinning themes now!
Findacure has partnered with AI-company Healx, to bring you an informative webinar on natural history studies in rare diseases. Join us on 20th January at 3:00pm GMT to learn how to overcome challenges when designing meaningful natural history studies and more!
Findacure is delighted to announce its next online workshop, which will guide patient groups through improving engagement with ethnic minority groups to better represent and serve their respective rare disease communities.
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