News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

29 June, 2020 / Findacure News

Rarechat | Engaging on social media during lockdown

Our next RareChat on Wednesday 8th July will be discussing how patient groups utilise social media during lockdown.
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22 June, 2020 / Findacure News

Webinar: What does Early Access actually mean?

Findacure and Metabolic Support UK are excited to announce their first joint webinar - What does early access actually mean? - supported by Bionical Emas.
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9 June, 2020 / Findacure News

New e-learning guide on running virtual events

Our latest guide helps your organisation to keep your communities connected and engaged through effective virtual events.
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[image description: photo showing a man sitting down at a workshop. He has a smile on his face and is looking at something off camera]
2 June, 2020 / Findacure News

Join our next workshop on social media

Findacure is delighted to announce its next online workshop, which will provide support and guidance to rare disease patient groups looking to expand their knowledge on using social media. Taking place in interactive 2-hour sessions across three days, the workshop will delve into three key topics: the ABC’s of using social media; communicating for impact; and top tips for running a social media campaign.
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[Image description: Webinar promo]
29 May, 2020 / Findacure News

Webinar: The National Lottery funding during Covid-19

Findacure know that many rare disease organisations are performing vital functions to support their communities throughout the pandemic, and could be eligible for funding from the National Lottery. We hope this webinar and subsequent discussion will encourage rare disease patient groups to apply for the support they need.
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[Image description: Promotional image for community fundraising]
7 May, 2020 / Findacure News

Community fundraising during Covid-19

We have compiled these ideas to help you raise funds through your community, even during the situation with Covid-19.
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A graphic which says that Findacure is hiring a Marketing and Engagement Manager and features a piucture of the Findacure team at the 2020 Drug Repurposing for Rare Diseases Conference
6 May, 2020 / Findacure News

We’re recruiting!

Findacure is recruiting a Marketing and Engagement Manager to help us raise raise awareness about the organisation and our projects.
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Promotional graphic for Findacure's RareChat project showing a zoom call with nine smiling rare disease advocates
5 May, 2020 / Findacure News

RareChat – Community Fundraising and Lockdown

RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.
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28 April, 2020 / Findacure News

Covid-19 Emergency funding document

At Findacure we are aware of the impact that Covid-19 has had on small charities and rare disease patient organisations. We have compiled this guidance to help your organisation to find funding in these difficult circumstances by utilising the emergency funding resources that have become available.
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Promotional graphic for Findacure's RareChat project showing a zoom call with nine smiling rare disease advocates
24 April, 2020 / Findacure News

RareChat – Rare Diseases and Mental Health

RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.
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