News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

[image description: a photo of three women sat around a table. They are engaged in conversation and two are laughing]
22 April, 2020 / Findacure News

Join our online workshop: Setting yourself up for fundraising success

Findacure is delighted to announce its first online workshop, which will provide support and guidance to rare disease patient groups looking to enhance their skills in fundraising. Taking place in interactive 90-minute sessions across three days...
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21 April, 2020 / Findacure News

Leading a rare patient group e-learning guide

Following our workshop in January, the latest guide on our e-learning portal centres on 'leading a rare patient group.' The guide covers the skills needed for good leadership and how these apply to patient organisation leadership.
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17 April, 2020 / Findacure News

Recruiting and managing trustees

Our webinar, taking place at 3 pm on Wednesday 22nd April, will help rare disease patient groups to establish efficient trustee boards that set their organisation up for success.
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[Image description: Infographic for the drug repurposing webinar]
31 March, 2020 / Findacure News

Evaluating the potential of drug repurposing for rare diseases and Covid-19

At this time of international crisis, a large number of companies and researchers are turning to drug repurposing as a potential solution – but what is repurposing and why is it such an attractive route for drug development at this time?
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17 March, 2020 / Findacure News

Findacure Office Closed – but work continues!

In light of the UK government's advice regarding the Covid-19 outbreak, announced on the evening of 16th March, the Findacure office has now closed and the team are all working from home.
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10 March, 2020 / Findacure News

Findacure’s response to Coronavirus

With the recent developments regarding Covid-19 (Coronavirus), we have been considering Findacure's response to the outbreak.
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Photograph of the three 2020 Student Voice Prize Runners Up with their certificates. From left to right - Muhammad Shaikh, Anneliese Ng, and Sandy Ayoub.
2 March, 2020 / Findacure News

Student Voice Prize Winners Published

The winners of the 2019 Student Voice Prize have now been published in celebration of Rare Disease Day 2020. You can find links to all of the pieces here.
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11 February, 2020 / Findacure News

Developing medical guidelines portal guide release

Announcing the release of a new learning guide on our online portal. The 'Developing medical guidelines' guide focuses on assessing your patient groups suitability for medical guidelines and walks through the different steps of developing medical guidelines alongside NICE guidance. Check it out if you are interested in understanding what medical guidelines do, how they can benefit your patient population and how you can create them.
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[image description: photo of a previous mentoring cohort smiling at the camera holding their graduation certificates]
31 January, 2020 / Findacure News

Applications are open for our patient group mentoring programme!

Are you looking to set up or grow an advocacy group for a rare disease? Or are you looking to share your professional experience and skills to benefit others? Well then, we have some great news for you! We are now recruiting mentees and mentors for the fifth round of our patient group mentoring programme, due to kick off in March 2020.  
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[Image description: screen shot of the conference website homepage ]
28 January, 2020 / Findacure News

New conference website and programme!

We are delighted to announce the launch of our new website for Drug Repurposing for Rare Diseases 2020! Our brand new website is an all-in-one source of information, news and updates on our staple Rare Disease Day event. Featuring speaker bios, an evolving event programme, and profiles on our event supporters, our new minisite is a fantastic resource - whether you are a regular attendee or planning your first conference experience.
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