News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

11 February, 2020 / Findacure News

Developing medical guidelines portal guide release

Announcing the release of a new learning guide on our online portal. The 'Developing medical guidelines' guide focuses on assessing your patient groups suitability for medical guidelines and walks through the different steps of developing medical guidelines alongside NICE guidance. Check it out if you are interested in understanding what medical guidelines do, how they can benefit your patient population and how you can create them.
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31 January, 2020 / Findacure News

Applications are open for our patient group mentoring programme!

Are you looking to set up or grow an advocacy group for a rare disease? Or are you looking to share your professional experience and skills to benefit others? Well then, we have some great news for you! We are now recruiting mentees and mentors for the fifth round of our patient group mentoring programme, due to kick off in March 2020.  
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28 January, 2020 / Findacure News

New conference website and programme!

We are delighted to announce the launch of our new website for Drug Repurposing for Rare Diseases 2020! Our brand new website is an all-in-one source of information, news and updates on our staple Rare Disease Day event. Featuring speaker bios, an evolving event programme, and profiles on our event supporters, our new minisite is a fantastic resource - whether you are a regular attendee or planning your first conference experience.
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21 January, 2020 / Findacure News

Student Voice 2019 winners announced

Today are very pleased to announce the winners of the latest instalment of Findacure and Medics4RareDiseases annual essay competition - The Student Voice Prize. For six weeks beginning in October medical students from across the world submitted their answers to one of our three questions about the rare disease experience.
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[Image description: Graphic advertising the new drug repurposing guide on the online portal]
8 January, 2020 / Findacure News

Announcing our latest portal guide on Drug Repurposing

Following on from our ‘Diving into drug repurposing’ workshop from November 2019, our latest portal guide focuses on the application of drug repurposing for rare diseases and the benefits of it for patient groups.
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[Image description: Graphic advertising the international patient registries webinar]
19 December, 2019 / Findacure News

Announcing our next webinar, international patient registries in January 2020

Following on from our patient registries workshop, Findacure is excited to announce our latest webinar on building an international patient registry in collaboration with pulse infoframe.
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29 November, 2019 / Findacure News

Staff changes at Findacure

It's been a month full of change for our Findacure team! Firstly, we are delighted to announce Mary Rose Roberts, previously our Events Manager, is now Findacure’s Head of Operations. Mary Rose now leads on the strategy and development of our Empowerment programme, as well as continuing production of our annual Drug Repurposing Conference and the Rare Disease Showcase Series.
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15 November, 2019 / Findacure News

Build your leadership skills at our first workshop of 2020

Findacure is delighted to announce its next training workshop, which will provide a comprehensive introduction to the theories of leadership and guide attendees through developing personal and professional leadership skills
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15 October, 2019 / Findacure News

Five spaces available in the Cambridge Half Marathon 2020

We are delighted to have secured five spaces in the 2020 Cambridge Half Marathon.
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