News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

4 October, 2019 / Findacure News

Student Voice Prize 2019 launches!

On 4th October 2019, the Student Voice Prize 2019 officially launched! In partnership with Medics4RareDiseases, this competition, now in its sixth year, offers a fantastic opportunity for medical students to develop an understanding of rare diseases.
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[image description: Libbie and team wearing facepaint]
30 August, 2019 / Findacure News

Saying goodbye to our Patient Group Development Manager, Libbie!

It is with great sadness that we announce Libbie, our Patient Group Development Manager, will be leaving the charity in late-September.
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15 August, 2019 / Findacure News

We’re recruiting a Fundraising Manager!

Findacure is recruiting a Fundraising Manager to help us raise the crucial funds we need to run our patient empowerment programme. We're looking for someone who is proactive and has experience in fundraising to join our small, hardworking team based just a few minutes' walk from Cambridge train station.
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18 July, 2019 / Findacure News

Come to our workshop this September!

Findacure is delighted to announce its next patient group training workshop, ‘Building a rare disease patient registry’! We listened to your feedback from our survey about what you would like to see in our workshops and you overwhelmingly voted for registries.
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[image description: KIF1A]
5 July, 2019

Misdiagnosis: Introducing KIF1A.org

A US-based patient-led organisation, KIF1A.org, is reaching abroad to find more affected patients. The organisation was started by parents dedicated to finding a cure for children living with KIF1A Associated Neurological Disorder (KAND), a rare progressive genetic disease.
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[image description: community fund logo]
2 July, 2019 / Findacure News

Findacure receives £300k from National Lottery

Findacure is thrilled to let you all know that our new Empowerment Programme has been awarded a three-year grant of £336,820 from the National Lottery Community Fund.
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14 May, 2019 / Findacure News

Wonderful news for Findacure fundraising!

Findacure are pleased to announce that we have recently joined a new fundraising platform, alongside Virgin Money Giving, called Wonderful!
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[image description: our patient engagement committee member Alan Thomas]
8 May, 2019 / Findacure News

Findacure’s new patient engagement committee

It is an exciting time for Findacure as we induct our new patient engagement committee.
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[image description: photograph of skydivers raising money for Findacure]
3 May, 2019 / Findacure News

Take part in our summer skydiving spectacular!

Calling all daredevils and thrill seekers: Now is your chance to sign up for the adrenaline rush of a lifetime!
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