Our first RareChat of 2021 is here!

Our first RareChat of 2021 is here!

Join us on Wednesday, 27th January, from 2pm – 3:30pm to discuss inclusion and engagement within your community. Claim your free ticket now to share your struggles and insights with your fellow patient group leaders and come away with new ideas on how to make your group more inclusive!

The new UK Rare Disease Framework is here!

The new UK Rare Disease Framework is here!

If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you. Learn the new UK Rare Disease Framework’s four key priorities and five underpinning themes now!