Findacure is delighted to announce its next patient group training workshop, ‘Building a rare disease patient registry’! We listened to your feedback from our survey about what you would like to see in our workshops and you overwhelmingly voted for registries.
Findacure is thrilled to let you all know that our new Empowerment Programme has been awarded a three-year grant of £336,820 from the National Lottery Community Fund.
Findacure are pleased to announce that we have recently joined a new fundraising platform, alongside Virgin Money Giving, called Wonderful!
It is an exciting time for Findacure as we induct our new patient engagement committee.