Get ready for our next online workshop!
The proof may be in the pudding, but we believe the proof is actually in the data! Our next online workshop will focus on data use, collection and storage. Learn more now and sign up!
June’s RareChat announced
Join us on Wednesday the 23rd June as we discuss Community fundraising through COVID-19 and beyond. Register to share how you see community fundraising continuing and evolving in the immediate and post COVID-19 era and more. Sign up now!
Recruitment for the sixth round of our Patient Group Mentoring Programme is now open!
Looking to build or develop your patient group? Searching for opportunities to utilise your skills to benefit others? Sign up today to be a mentee or a mentor on the sixth round of our Patient Group Mentoring Programme! Applications close Sunday 4th July.
Next RareChat = Patient group experiences of using data!
Our next RareChat will focus on patient group experiences of using data! Join us on Wednesday 26th May at 10am to discuss the benefits and complexities of data use within patient groups. Claim your FREE ticket now!
April showers bring…a new RareChat!
You spoke and we’ve listened! This month’s Rarechat is on rare disease and employment! Join us on Wednesday 28th April to discus what it’s like to have a rare condition in the workplace. Register now!